Daflon 500mg tracking thread

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Daflon 500mg tracking thread

Postby ReddE4 » Thu Oct 13, 2011 7:16 am

Has anybody on this thread tried to have daflon 500mg compounded. I don't know if it can be done but it would seem to me to be straight forward. Diosmin 450mg Hesperidin 50mg
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Re: Daflon 500mg tracking thread

Postby Rosegirl » Thu Oct 13, 2011 7:52 am

I've taken Daflon 500 for about 18 days. Here's what I've noticed.

My feet are purple less often although the left (always the bad one) is usually more purple than the right. Standing for a while is usually what causes them to turn purple.

As for ease of movement and gait:

Before starting Daflon, both legs felt heavy (again, the left much worse than the right). As for energy to keep moving, it felt like my "motor" was on 50% power. That was enough to keep lurching from place to place, but it was ugly.

Now my legs never have that heavy feeling, but it feels like my "motor" is running on about 30% power, so each step is easier, but there's a noticeable lack of energy, so the net result is that my gait and balance are pretty much the same.

I'm going to give Daflon at least a month.
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Re: Daflon 500mg tracking thread

Postby David1949 » Thu Oct 13, 2011 7:13 pm

Update: Two weeks on Daflon. No noticeable change yet. Will continue taking it until my 1 month supply runs out.
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Re: Daflon 500mg tracking thread

Postby David1949 » Mon Oct 17, 2011 8:23 pm

I'm going to temporarily stop taking Daflon because I have a cold right now. I don't want to take anything that might suppress the immune system. Will resume later.
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Re: Daflon 500mg tracking thread

Postby HappyPoet » Mon Oct 17, 2011 8:43 pm

David, sorry about your cold. I dread flu season. Good luck getting better fast.

My primary doctor said I might have to wait a couple months before I notice a difference in the petechiae on my legs. If taking Daflon doesn't help by the end of the year, I'll go to a vascular doctor.
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Re: Daflon 500mg tracking thread

Postby David1949 » Thu Oct 20, 2011 4:54 pm

I don't know whether this thing I have is a cold or an allergy. I seem to get it about twice a year for the last 5 years. My doctor also doesn't know whether its a cold or allergy, but he does know how to fix it. He gives me two things; antibiotic pills plus a steroid shot in the butt. That usually brings relief within 24 hours. I got that today about 5 hours ago and I'm already feeling back to normal. :smile:

Now if only they had something like that for MS.

I'm going to wait until I'm done with the antibiotics in 5 days and then resume the Daflon.
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Re: Daflon 500mg tracking thread

Postby NormB » Sat Oct 22, 2011 8:58 am

Hi everyone, I have finished with my 30 supply of Daflon. I'm not renewing
my order. Simply I have not had meaningfull improvement.
Time to think for my last drug recourse, LDN.

NormB
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
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Re: Daflon 500mg tracking thread

Postby Jugular » Sat Oct 22, 2011 9:45 am

NormB wrote:Hi everyone, I have finished with my 30 supply of Daflon. I'm not renewing
my order. Simply I have not had meaningfull improvement.
Time to think for my last drug recourse, LDN.

NormB
Sorry to hear that Norm. There are always new things to try. You're bound to find one that works for you.

I'm thinking now that Daflon's benefit for us is in the microcirculation (less leakage) and getting the valves to work better. The studies all point to improvement in valvular incompetence. Valvular incompetence is what happens when the valves aren't closing properly. The CCSVI valvular issues, however, are usually truncular valvular malformations which cause the valves to be stuck closed. I doubt that Daflon can repair a malformation, but it should help functioning valves work better (opening and closing).

So far I'd say that Daflon has augmented my CCSVI benefits and my cognitive mood and function seem to be better. I think it's an important tool, along with exercise, to capitalize on the benefits of CCSVI treatment and perhaps to stave off restenosis.

Lately, I've added L-Argenine to my supplements, and the two seem to complement each other even though L-Argenine is a vasodilator. Add that to the growing pile of MS contradictions. I was concerned about the nitrous oxide part of it, given all the studies on MS patients having higher volumes of it, though there seems to produce a variant that is beneficial to endothelial health.

Anyway, L-Argenine hasn't caused any additional improvement yet in my neurological motor function, but it does (knock on wood) seem to be really helping with my neuropathic pain (which Daflon didn't). My neuropathic pain has proved to be very stubborn in the past so we'll see if it comes roaring back. In the meantime, I'm a happy camper.

So on my growing CCSVI recovery supplement list, I have Vitamin D, Fish Oil, whey protein, Daflon 500mg and L-Arginine. All these supplements and liberation surgery are pretty expensive, but far less expensive and a thousand times more effective than the so-called DMD's used to be.
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Re: Daflon 500mg tracking thread

Postby 1eye » Sat Oct 22, 2011 10:13 am

I was taking whey protein until I looked at the label after my heart attack and found out how much cholesterol was in it.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Daflon 500mg tracking thread

Postby Jugular » Sat Oct 22, 2011 10:47 am

1eye wrote:I was taking whey protein until I looked at the label after my heart attack and found out how much cholesterol was in it.

It shouldn't have any, unless you were taking it with milk. I checked the label on mine and it ad zero I think a protein supplement is pretty important if you are trying to rebuild muscle. Anyway, on the topic of cholesterol, for the first time in my life, except for when I was on statins, I returned a good profile when I was last checked due to all the fish oil I've been taking. Collateral benefit.
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Re: Daflon 500mg tracking thread

Postby David1949 » Wed Oct 26, 2011 2:01 pm

OK I'm over my cold and off the antibiotics so I resumed taking Daflon yesterday. I'll keep taking it until I finish off my 30day supply.
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Re: Daflon 500mg tracking thread

Postby Jugular » Sat Oct 29, 2011 8:46 am

Okay so I jumped the gun on the nerve pain. Wishful thinking I guess. The combo of L-Arginine and Daflon (or Pycnogenol) does seem to be a good one though. I think they are important supplements to ward off restenosis and can augment improvements from angio. I've had no further surges forward but am increasing my strength with my workouts incrementally. This still floors me since in the decade or so before angio, the best I could do is try to slow my decline. To be able to get these increases is something, really something.
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Re: Daflon 500mg tracking thread

Postby dania » Sat Oct 29, 2011 8:54 am

I have stopped my Daflon after 10 days. I was getting worse do not know if it was the Daflon but I have been off of it for about 10 days and I am back to my sh...ty self. Maybe because all 3 veins are blocked, I am relying on my collaterals to drain the blood from my head. So I guess if they are more constricted there would be less blood flow. I tried Cialis 2 days ago and within 1 hour I noticed improvements. Sadly they only lasted 4-5 hours.
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Re: Daflon 500mg tracking thread

Postby Jugular » Sat Oct 29, 2011 9:16 am

Have you tried L-Arginine? It is supposed to have Viagra like effects, without being as 'hard' on you.
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Re: Daflon 500mg tracking thread

Postby dania » Sat Oct 29, 2011 9:36 am

Yes. I think I have tried almost anything, even bee stings.
I do not trust supplements as the manufacturers are not required to do any quality control testing. So you never know what you are truly buying. They may contain what is on the label or it may have much less than what is on the label. I know L-Arginine has been proven to be a vasodilator.
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