just starting CCsvi

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

just starting CCsvi

Postby jsm6252 » Fri Sep 16, 2011 3:27 am

Hi all
i've had MS since 1991 and found great benefits in LDN. Just found out aboutt CCSVI which i will do next month in oct.am very excited.I will let you know how it all goes.
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Re: just starting CCsvi

Postby NHE » Fri Sep 16, 2011 3:39 am

Welcome to ThisIsMS. I hope that you'll find a supportive community here. Where will you be getting tested and treated for CCSVI? Just curious, what stage of MS do you have, RRMS, SPMS, etc?

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Re: just starting CCsvi

Postby jsm6252 » Fri Sep 16, 2011 3:41 am

in newcastle aus
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Re: just starting CCsvi

Postby Cece » Fri Sep 16, 2011 5:04 am

That's great. Welcome and all best wishes on your upcoming procedure.

If you have any questions that the collective here might be able to answer, let us know. Has your doctor done any CCSVI procedures before? There can be a learning curve, and there are differences between doctors in terms of how aggressive or conservative they are, and it's important not to damage the jugular in an attempt to improve the jugular. The procedure has worked well for me.
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Re: just starting CCsvi

Postby civickiller » Fri Sep 16, 2011 11:24 am

i suggest being tested and corrected for any upper cervical misalignments first before ccsvi surgery
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Re: just starting CCsvi

Postby Cece » Fri Sep 16, 2011 12:06 pm

See a chiropractor for chiropractry if you like, but see a vascular interventional radiologist for CCSVI. There is no way chiropractry would have improved my 80% and 99% jugular blockages!
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Re: just starting CCsvi

Postby fee001 » Fri Sep 16, 2011 12:13 pm

Hi!

Yes you need to weigh up your options first, and an Atlas misalignment is a serious possibility, Have your cervical spine checked out first yeah! by a reputable Chiropractor, if that turns out to be your problem it will be substantially less costly to have rectified.

I have had mine adjusted and my bloodflow significantly improved, I only noticed as the upper veins in my hands increased, inherrited my Dads hands, didnt realise that they had gone until they came back so to speak. And Atlas misalignment is known to effect blood pressure. just google it you should get results show up.


Dont have a procedure that may not be neccessary


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Re: just starting CCsvi

Postby civickiller » Sat Sep 17, 2011 12:01 am

uprightdoc wrote:The latest MRI studies show that specific upper cervical effects both blood and CSF flow in the brain and cord.

uprightdoc=Dr. Flanagan

This why I think UCC will greatly improve the success rate of ccsvi surgery alot if the surgery is still needed after UCC holds its correction

HP saw a notable increase in CSF flow as stated by the Dr. doing a UCC trial HP was in

cold feet is/was associated with ccsvi, after a ucc adjustment, i now have warm feet. Blood flow or nerves?
Last edited by civickiller on Sat Sep 17, 2011 12:19 am, edited 1 time in total.
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Re: just starting CCsvi

Postby civickiller » Sat Sep 17, 2011 12:17 am

Cece wrote:There is no way chiropractry would have improved my 80% and 99% jugular blockages!


vein stenosis or valve malformed?
oh and on your mrv, your spine isnt straight with a slight head tilt, unless you were lying angled or the imaging was off
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Re: just starting CCsvi

Postby jsm6252 » Sat Sep 17, 2011 2:15 am

thanks for all your responses.I've seen chiros in the past with no avail.the dr in newcastle has done a few procedu8res with great success
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Re: just starting CCsvi

Postby NHE » Sat Sep 17, 2011 2:24 am

jsm6252 wrote:in newcastle aus


Do you know what type of procedure they use? For example, do they use intravascular ultrasound (IVUS)?

The number of procedures they have done is also an important consideration.

By the way, you may have missed one of my questions as I was editing my post at the time you replied. I was wondering what stage your MS is at?

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Re: just starting CCsvi

Postby Cece » Sat Sep 17, 2011 8:41 am

jsm6252, despite all the side talk, I hope you got the message that most of us share your excitement and hope that your procedure too will be a great success, like the others your doctor has done.
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Re: just starting CCsvi

Postby civickiller » Sat Sep 17, 2011 12:46 pm

if you would like to try UCC, i at least recommend getting tested for a UCC misalignment, what does it hurt. here is a list of some UCC Dr's in the NSW

http://upcspine.com/prac3.asp?rid=1&r=A ... =AUSTRALIA

I would make sure the Dr you see takes xrays to be more precise

a regular chiropractor doesnt fix a C1 and C2 for misalignment
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