This Is MS Multiple Sclerosis Community: Knowledge & Support

http://www.cvz.nl/binaries/content/docu ... tation.pdf

A background report on the treatment of CCSVI. To skip to the punch, here is what they concluded:

I'll have to read it more thoroughly. But I think there is scientific evidence for the efficacy of widening blocked veins, whether the patient also has MS or not.

I don't know if I want to spare the time to read this in full. I have come across a seriously wrong estimate of the number of MS patients in Scotland or even in the UK. In Scotland the numbers are likely to be three times what they quote. We have done a small amount of research in this area and from our results it appears that number of MS patients should be more like 165,000 in the UK rather the 65,000 that the figures they quote translate to, and I am seriously rounding down. So far the figures we have received from Doctors average out at 0.29% of the population. And because we only have a couple of results from Scotland we cannot be sure if what I suggest is correct, the figures we have got from England are as high as those we have from Scotland.
If some one reading this lives in the UK, please help us get more accurate figures by writing to doctor's surgeries in your area. There is a letter you can use here:http://www.vital-now.org/#!vstc5=letters/vstc3=action-dd-4-7/vstc1=action
Thanks
Michele

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

The most recent research of number of pwMS in UK is 100,000. Search MS Trust for details.

The review is bad news for people in NL wanting CCSVI treatment. The Dutch government has produced a review which concludes they should not pay for it.

MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

That sums it up precisely.

Here's a quote about the inclusion/exclusion criteria:

This is where it would help to have CCSVI accepted as a disorder of its own (or a syndrome of its own) and then be looking at the treatment outcome on the condition of CCSVI itself, not on the course of MS.

And here are the results of that literature search: nothing. They were looking for a comparative study that reported facts and figures on the course of MS after venoplasty treatment....that must mean randomized controlled? Then they note that there are four trials underway, which might meet these standards.