ccsvi feasability

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

ccsvi feasability

Postby jsm6252 » Sat Sep 17, 2011 11:37 pm

I've read lots about ccsvi good and bad.
what is the general consensus about it?
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No consensus

Postby MarkW » Sun Sep 18, 2011 10:04 am

There is no consensus on CCSVI. It is a personal choice usually governed by your approach to risk and do you have sufficient funds to go with your choice.
I assess that balloon venoplasty is a low risk compared to progression of my MS. I have sufficient money to have had balloon venoplasty on two occasions (June 2010 and June 2011) worth it for me.
Consensus takes a long time to acheive.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: ccsvi feasability

Postby Cece » Sun Sep 18, 2011 10:47 am

I agree with Mark, I don't think there is consensus yet among patients, between neurologists and IRs, and among IRs themselves. Although I think most IRs would agree in general that blocked blood vessels contribute to abnormal flow and that they have the tools to fix this.

For me it was covered by insurance, so funding was not an issue. I had severe blockages and immediate improvements.
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Re: ccsvi feasability

Postby jsm6252 » Tue Sep 20, 2011 4:24 pm

thankyou for your comments
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Re: ccsvi feasability

Postby frodo » Sat Sep 24, 2011 2:09 pm

jsm6252 wrote:I've read lots about ccsvi good and bad.
what is the general consensus about it?


CCSVI is a venous condition whose existence has never been questioned by any serious article. About the question whether CCSVI can cause MS or any other problem at all, no consensus has ever been reached. You will have to read the research articles and reach your own conclusions.
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Re: ccsvi feasability

Postby Lyon » Sat Sep 24, 2011 2:56 pm

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Last edited by Lyon on Wed Nov 09, 2011 8:51 pm, edited 1 time in total.
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Re: ccsvi feasability

Postby IHateMS » Sat Sep 24, 2011 4:50 pm

what is accomplished by your CONSTANT negativity? Gets your rocks off or what?
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Re: ccsvi feasability

Postby Lyon » Sat Sep 24, 2011 7:37 pm

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Last edited by Lyon on Wed Nov 09, 2011 8:51 pm, edited 1 time in total.
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Re: ccsvi feasability

Postby Cece » Sat Sep 24, 2011 7:58 pm

It is not true that hope alone supports CCSVI theory. There is evidence of an association between CCSVI and MS. There is precedence in other blood vessels in the body, that they function best when unblocked. My jugulars looked terrible pre-procedure. They looked much better after being treated.

I agree that we need research to prove the results so that this can go forward as evidence-based medicine. It is a treatment that I wish everyone with MS had access to, if they wanted it, and were comfortable with what is currently known and what is currently not known.
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