Frankly I am never bored when the conversation is about CCSVI.
The patient must talk to the doctor who performed the procedure about complications. Trying to get a diagnosis on TiMS is unsafe.
Yes. Contact your doctor is always the first, best advice. Still it is good for people to know that the doctors are not all in agreement as to what to do about a complication. For example, in the latest case in Dr. Sclafani's thread, a major thrombus was discovered during a venogram procedure but was treated very conservatively with anticoagulants. There were other options, particularly manual removal, that would have been possible with a newly formed clot.
I find that there is a gray area between trusting one's own doctor and knowing that the procedure, and everything surrounding the procedure, is not yet standardized.
I see your reasoning in reporting all the facts. I just didn't want to "bore" everyone with a lengthy report of his procedure.
1. MRV was done at a local hospital and a venogram was done at the time of the procedure.
2. Procedure was done at the Vascular Access Center in Seattle by Dr. Marlo Moya
3. Azygous V. Genu 70%
Azugous V. Vertical 70%
Left Jugular 80-90%
R. Jugular 70%
Brisk flow was restored by angioplasty. Plavix 75mg and ASA 81 mg was prescribed daily for 2 months.
Those are high-grade stenoses.
I haven't seen the terms "azygous V. genu" or "azygous v. vertical" but am assuming that genu is the arch and vertical is the vertical portion of the azygous. It is unusual to hear of stenoses in the vertical portion of the azygous and that is where the debatable "candy-wrapper" stenosis has sometimes been seen. (Debatable because it may change appearances based on breathing and therefore not be a true stenosis.)
Plavix and aspirin are both antiplatelets, not true anticoagulants. There is little consensus on what type of anticoagulation is needed and no proof that that true anticoagulants do a better job than antiplatelets at preventing clotting in the jugulars and azygous.
Another important detail would be the size of balloons used on each vein.
It has also been suggested that patients with primary progressive MS have had less of a response to the procedure in terms of their MS symptoms getting better. I hope that doesn't turn out to be true.