billmeik, did you google any of the articles about this? seems i read he's trying to get a trial started. maybe try contacting other hospitals to see if they are getting in on this.
perhaps take the info. to some of the neurosurgeons where you live. remember just because it was in the paper doesn't mean that all of the best of best neurosurgeons have heard about it. look at ccsvi.
i don't know where you live but john hopkins in md. would be a place i'd call.
any of the big hospitals or all you can. this is a little different than when ccsvi was trying to break through.
i hope you can get your sister in somewhere soon.