MarkW's list on 27 Sept (possibly out of date today):
Gold standard diagnosis of CCSVI syndrome must use both intravascular ultrasound (IVUS) and catheter venograms. Veins in the neck and truck scanned should include vena cava, transverse and dural sinuses, plus internal jugular, azygous, hemi-azygous, iliac, and right renal veins.
It's left renal vein and left iliac that get checked, to my knowledge. Dr. Zamboni's team as well as Dr. Sclafani also check the ascending lumbars but cannot treat them.
Here is a renal vein case:chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-5190.html
I have to go edit my earlier post to say ml/min!!
Dr S is the person to ask this question to.
Well, that will get you Dr. Sclafani's answer. This particular question is a challenge as a patient because different doctors have very different answers. That's why this is a good one to understand the reasoning behind the different doctors' approaches and make sure we're comfortable with the approach of the doctor we've chosen. It's no fun afterwards to be second-guessing what was done, if the results aren't as expected.
PS Treating CCSVI syndrome is these areas will not alleviate MS symptoms. We are treating CCSVI syndrome with the primary hope that MS progression will be slowed or stopped. Some people experience improved MS symptoms but that is not guaranteed
I think it is better to say we are treating CCSVI, with the most likely effect being an improvement in CCSVI symptoms. (Fatigue, cogfog, balance, tinnitus.) Any improvement in MS is much desired. The cessation of progression would in itself be an enormous improvement. I have worried that what we might get is improved symptoms in the short-term but continued progression. I am sad that there is not more research underway right now than what there is. We need to know more....
Even if I quibble on finer details, I like your advocacy, Mark, and your activism.