Treatment/Minneapolis

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Treatment/Minneapolis

Postby Gardenia » Tue Oct 04, 2011 1:39 pm

Is treatment available in Minneapolis? Is Dr. Michael Cumming etill doing the procedure for CCSVI or is he not any longer? I noticed on the HUbbard foundation map that it appears that he isn' t...
User avatar
Gardenia
Family Member
 
Posts: 25
Joined: Wed Jul 06, 2011 3:00 pm

Advertisement

Re: Treatment/Minneapolis

Postby Cece » Tue Oct 04, 2011 3:40 pm

Dr. Cumming is still doing procedures. Do you have any questions about him? I saw him less than a month ago, he does my local follow-up ultrasounds. He's a good choice, I think. He uses IVUS on every procedure. It's rare for CCSVI doctors to use IVUS at all, and with IVUS they may be able to find about 40% more stenoses than without it. (Percentage based on the Italian abstract on the use of IVUS and on Dr. Sclafani's recent tabulating of his cases.)
Cece
Family Elder
 
Posts: 9024
Joined: Mon Jan 04, 2010 4:00 pm

Re: Treatment/Minneapolis

Postby Gardenia » Thu Oct 06, 2011 2:00 pm

No, I was just wondering, I am presently in Canada and as cost is a factor follow up isn't an option for me. I was treated recently...given tht i'm Canadian I'm in a bit of a bind, had treatment but have no idea what' going on inside, I worry tht I hve restenosed. Can't afford to travel south.And I blame Canada for this.
User avatar
Gardenia
Family Member
 
Posts: 25
Joined: Wed Jul 06, 2011 3:00 pm

Re: Treatment/Minneapolis

Postby munchkin » Thu Oct 06, 2011 2:26 pm

Hi

I'm from Winnipeg and if you are from Manitoba you can get an u/s done here. I have had an emergency one done at St.Boniface due to concerns about clots. It was done within 3 days. My GP ordered it and he has just ordered a follow-up, haven't got the date yet but I am going to request Steinbach, they only have a 2 week waiting list.
User avatar
munchkin
Family Elder
 
Posts: 309
Joined: Fri Apr 01, 2011 3:00 pm
Location: Canada

Re: Treatment/Minneapolis

Postby Cece » Thu Oct 06, 2011 3:25 pm

Munchkin, will they be looking at flow in the jugulars and trying to visualize valves, or are they just looking to see if there are clots? I think it is fantastic whenever anyone achieves getting their jugulars looked at in Canada. And I hope they find nothing wrong with yours.
Cece
Family Elder
 
Posts: 9024
Joined: Mon Jan 04, 2010 4:00 pm

Re: Treatment/Minneapolis

Postby munchkin » Thu Oct 06, 2011 4:08 pm

They just look for clots, the whole idea of CCSVI is so foreign to all of the Dr's and techs here. I have had some very disappointing conversations with Dr's who should know better. But, at least they will look. It's important to ask the tech how the blood flow is because the reports have not said whether there is narrowing.

This time it's after the second treatment and I haven't really improved, so I'm actually hoping the vein restenosised. It's definitely not the standard hope. Thanks for the thought.
User avatar
munchkin
Family Elder
 
Posts: 309
Joined: Fri Apr 01, 2011 3:00 pm
Location: Canada

Re: Treatment/Minneapolis

Postby DrCumming » Wed Oct 12, 2011 9:30 am

hi,

where were you treated? did you experience any improvements? did you have an US prior to treatment? do you have the images from your procedure?
User avatar
DrCumming
Family Elder
 
Posts: 209
Joined: Sat Dec 25, 2010 4:00 pm
Location: Minneapolis, MN


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Who is online

Users browsing this forum: suze


Contact us | Terms of Service