This Is MS Multiple Sclerosis Community: Knowledge & Support

One of the big attractions to CCSVI/ Liberation is that it can be done now, at least in some places. And it seems to provide great improvements for some people.

Have there been any operations on pwMS to correct CSF flow? If so have they had any success stories?

Sorry but I just can't get too excited about this until there is some demonstration that it works.

Yes, but it is CCSVI venoplasty.
Obstructed flow in the jugulars also obstructs the CSF flow.

for those closely following the CCSVI story develop ...... there have been TWO
mentions of pediatric MS study's . Dr.Zivadov's .... the most recent.

Both , hint-suggest , that MS is possibly already at work , from birth.

I point out that many childbirths involve the use of forceps.

For those that have ever eye witnessed the use of these ..... it is not difficult at all to come to the conclusion that the child being pulled from the mother ....... is indeed suffering some TRAUMA to the head and neck ,as a great amount of force is used.

It would benefit MS research to review the health records of those type of delivery's.

Surely , this line of reasoning has already been explored . But on the other hand , for some reason , little has been explored in the area of brain drainage . Until Dr. Zamboni came along.

It's as good a theory as any other ............


Mr.Success

If MS is triggered by some type of drainage disorder, a trauma may be an additional risk factor nothing more.

When one identical twin has MS the other will get it with a chance of 30%. There is a STRONG genetic correlation.

The important point in this study is that it points to a drainage / pressure disorder as a (main?) risk factor.

R.

must it be physical trauma?????many tell me that something profoundly emotional revved up their disease....

While not an invasive operation, one UCC adjustment immediately caused "a notable increase" in my CSF flow.

Are people in northern climates more accident prone? Perhaps, with less sunlight to guide them.

I read about a new oral MS drug today - terflunomide - which has shown promise in a Phase 3 clinical trial. It works on the premise that MS is caused by an autoimmune disorder. Of course I'm posting this information in a thread which claims that MS is caused by trauma, in a forum which primarly holds the view that MS is caused by a vascular disorder.

I guess I will need to address my autoimmune, trauma and vascular issues to get a leg up on this disease.

i think northern states and canada because of the snow/ice with slip and falls and that why less common in tropical climates.

think of every one of the "common factors" in MS, sorry im drawing a blank on how to describe it, then think of the susceptible trauma, northern state, more women, less cases in tropics cant think of any more.

That's just the sort of thing someone from Hawaii would say.

I would really like to know how many children with MS , had difficulties at birth.

As I have already said , to witness a child born using forceps .... is almost barbaric.

Much better to C-section. Safer.

Historically , man has climbed .... and thus ......... man has fallen . Trauma results.



Mr.Success

A series of UCC treatments significantly reduced my leg spasticity. But then nothing more. It did nothing to reduce the drop foot problem which is my biggest issue.

dont be jealous i get to see hot girls in bikinis all the time



is your atlas holding its correct alignment now? how long have you been doing UCC?

i think UCC should be corrected first before CCSVI, im not against CCSVI surgery. with so much having no or little effect from the surgery, i hope with a combination of the 2, 100% will gain from the surgery after both are completed. may take longer but spending 12k on the surgery, i want to do everything to make sure it works because i know i wont be able to afford 12k again

Besides, look at this old article from Zamboni, which states a relationship between CCSVI and CSF flow:

CSF dynamics and brain volume in multiple sclerosis are associated with extracranial venous flow anomalies
www.ncbi.nlm.nih.gov/pubmed/20351670

Abstract
AIM:

We previously reported unexpectedly robust associations between vascular haemodynamic (VH) anomalies in the principal extracranial cerebral veins, causing chronic cerebrospinal venous insufficiency (CCSVI), and multiple sclerosis (MS). Aim of this study was to investigate the relationship between the VH changes and MRI measures of MS disease severity in a cross sectional survey.
METHODS:

The number of anomalous VH criteria were measured using an echo-color Doppler, whereas CSF flow, atrophy and lesion measures were obtained from quantitative magnetic resonance imaging (MRI) analysis in sixteen consecutive relapsing-remitting MS patients, (mean age: 36.1+/-SD 7.3 years, disease duration: 7.5+/-1.9 years and median EDSS: 2.5) and in 8 healthy controls (HC) with similar age and sex distributions.
RESULTS:

All 16 MS patients investigated and none of the HCs met the VH criteria for CCSVI (P<0.0001). MS patients showed significantly lower net CSF flow compared to the HC (P=0.038) that was associated with number of anomalous VH criteria present (r=0.79, P<0.001). Moreover, increases in the number of anomalous VH criteria present were negatively associated with lower whole brain volume (Spearman R=-0.5, P=0.05).
CONCLUSION:

VH changes occur more frequently in MS patients than controls. Altered VH is associated with abnormal CSF flow dynamics and decreased brain volume.

_________________
You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info

David 1949 wrote:
"Have there been any operations on pwMS to correct CSF flow? If so have they had any success stories?"
Cece comments:
"Yes, but it is CCSVI venoplasty.
Obstructed flow in the jugulars also obstructs the CSF flow."
MarkW notes:
It seems that a simple explanation is required. The CCSVI syndrome procedure probably improves CSF flow (not proven). The evidence for thinking this comes from the rapid changes (hours or next day) after de-stenosis. If CCSVI syndrome was only caused by a lack of oxygen that would have caused cell death in the brain (read around stroke for background info). Reducing CSF flow is likely to cause an increase in waste products in the brain. This increase in waste products is likely to cause a slow down in brain function but not cell death.
That is why I posted:
"I suggest a test of this upright MRI before and after a gold standard CCSVI syndrome diagnosis and de-stenosis by Dr Sclafani. Brooklyn and Melvile are pretty close, so its just a matter of money and people talking.
We may be at the start of showing what CCSVI treatment does to CSF flow in the brain."
As soon as a change in CSF flow is demonstrated (after the CCSVI syndrome procedure) we have a simple justification for the CCSVI syndrome procedure. I doubt that even that an anti CCSVI neuro would argue that improving CSF flow is a bad thing to do.

Jugular wrote: "...............I'm posting this information in a thread which claims that MS is caused by trauma, in a forum which primarly holds the view that MS is caused by a vascular disorder."
MarkW notes:
Prof Zamboni calls CCSVI a syndrome. He says MS is multifactorial and keeps his patients on immune regulation drugs. So lets be clear: trauma may be one of the factors in some cases; CCSVI may be one of the factors; immune regulation may be one of the factors; vit D may be one of the factors; etc,etc may be one of the factors in some cases.

Please let's us stop arguing about the cause of MS, simply we don't know the answer. I suggest that we diagnose and treat CCSVI syndrome in pwMS as our priority.

MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

i think if treat with Upper Cervical Care right after the trauma, ms and most neurological diseases can be prevented.

UCC should become mainstream and as frequent as dental visits to prevent any neurological diseases