Telling people they are spreading gossip, hearsay and rubbish is inflammatory and will get you nothing here but ignored. I think the doctors who are legitimately working in CCSVI research and treatment do not have anything to prove to people in this forum, and have had to face down many critics with very real qualifications. People in these parts will understand over-sensitivity, as they have been the objects of a lot of negative attention. But please, criticizing Cece's posts will not make her go away. She has a life, and a large part of it has been dedicated in the last couple of years, to making sense of the whole CCSVI situation, helping those pwMS who are interested in the CCSVI procedure, science, medical research, etc. As a consumer she has been most vigilant on their behalf.
I am not trying to dissuade anyone from getting anybody's treatment, as I do not have enough knowledge or information, but I do believe that such vigilance is necessary. I think those in this forum generally don't want anyone to get a free ride on the backs of sick people. A lot of potential CCSVI patients read and heed what Ceci says. She has proved herself to them, and if you read this forum from its beginning, you would see that. She has had her procedure, and has no conflicting interests.
Nobody is unique in offering "the full Haacke protocol" (sounds like a wrestling hold :^) unless Dr. Hubbard's Foundation is the only one, or is not offering it anymore. I received email from them this morning:
Correct, the physicians here prefer to use catheter venography and MR Venography.
On Oct 11, 2011, at 9:45 AM, 1eye wrote:
> So far I have not seen any information (and I believe I have good sources) that leads me to believe you use IVUS, though I was hoping you did. This requires experience, and I would be concerned if you said you had just started to use it. Please let me know if I am wrong about this. It is a necessary part of CCSVI procedures, used by a few people in the US. Thanks.
> On 10/10/2011 2:03 PM, Hubbard Foundation wrote:
>> The pre-treatment testing is MRI Venography, which is a non invasive test. Once at the treatment facility, the IR will use catheter venography to look at the veins in real time, prior to ballooning. If you would like the name of the instrument they use, I would be happy to find out that information.
* In the above, I changed my name.