CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI

Postby AMIT411 » Sun Oct 09, 2011 8:53 pm

I am scheduled to get my CCSVI this week. Can anyone give me a recommendation as how I should handle the anxiety of going through this surgery.
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Re: CCSVI

Postby euphoniaa » Mon Oct 10, 2011 2:33 am

AMIT411 wrote:I am scheduled to get my CCSVI this week. Can anyone give me a recommendation as how I should handle the anxiety of going through this surgery.


Hi AMIT and welcome!

I suggest that you ask your question in the CCSVI section of ThisIsMS rather than here in the General Discussion section. I'm sure you'll get many more replies there - some posters never post anywhere else. :smile: Here's a quick link to the CCSVI Forum:
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/

Good luck!
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: CCSVI

Postby euphoniaa » Mon Oct 10, 2011 5:51 am

Well, the post has been moved to the correct forum. Now we just have to hope that AMIT411 finds it here rather than assuming it was deleted. :-D
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: CCSVI

Postby Cece » Mon Oct 10, 2011 6:06 am

euphoniaa wrote:Well, the post has been moved to the correct forum. Now we just have to hope that AMIT411 finds it here. :-D

Especially since your helpful post is now here too (saying to look in the CCSVI forum)!

Amit, I don't know, I was anxious too. If you've made the choice to go for it, it's because you've educated yourself about CCSVI and the possibility of improvements and the possibility of whatever risks there are. Deep breaths! The procedure itself is not bad. There's the uncomfortable messing around with the leg when they're getting things set up and then you don't even feel the guidewire or catheter going through your veins so then the next uncomfortable part is the ballooning itself. It's all over quickly. Thousands of people have had this done, for CCSVI, and who-knows how many people have had it done in other places in the body or in the arteries. Our IRs know their way around.
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