The doctors were very insistent that they were treating MS, not CCSVI--I wonder why.
Perhaps because they wanted to get paid, and certain cretins have been going around warning people if they travel too far they're in danger of falling off.
Chronic cerebro-spinal venous insufficiency is a good description of what is being treated. These veins are becoming not enough to keep the person healthy. The condition gets worse over a period of years. Maybe, like ears, they should keep growing throughout life. Maybe if they stop growing, and adapting to physical changes, they become insufficient. Or the valves get stuck. Seems the patients do get better though.
The problem is really with the single-minded focus on the acceptance of the description by neurologists (and others, like Society executives), who have a lot invested in an insufficient understanding of the disease, not the name. If it works, who cares what you call it, who has raised money for it in the past, or what has been written in research papers? Aren't the patients more important? ...OK, where are those tranquillizers??