This Is MS Multiple Sclerosis Community: Knowledge & Support

is Dr. Sandy McDonald teaming up with the Hubbard Foundation?.....

http://www.facebook.com/notes/ccsvi-in- ... 9388294919


I find it upsetting that the study does not allow him to do angioplasty. I also wonder if his patients will all have been treated at different clinics. That affects the results, because the different doctors have very different methods. It would have been better if he could have done a study with him doing the angioplasties. I hold him in high esteem. And I would prefer if it was measuring restenosis and complications by doctors using IVUS! Because if the vein is precisely measured with IVUS, it may reduce restenosis rates due to underdilatation and reduce complications due to overdilatation.

Still, a study is a study, and this will be a helpful one so that we can get some sense of the numbers in regards to restenosis and complications.

In the last few days, we've talked about a number of studies underway! This one by Dr. McDonald, the plethysmography/doppler ultrasound/MRV diagnostic comparing imaging study by Dr. Simka, the 30-person IVUS study by Dr. Harris. More, more, more. I remember it being said that there will be a thousand papers on CCSVI within ten years, which may end up being an underestimate.

I don't think it will take ten years for the "thousand" papers to accumulate, I will be seeing Angela at Dr. S. McDonald's clinic next month, all this info is needed and more that is collected the more ammunition we will have to bury the "placebo effect"and really begin treating people.

Cece, Dr. Zamboni was quoted somewhere as saying there would be over 10,000 CCSVI studies in the next ten years.

That's the quote! And when I said an underestimate, I thought that 1000 papers would be an underestimate. Of course 10,000 seems a little high to me, but Dr. Zamboni has been right before!

Thanks, HP.

I'm sure if location and doctor performing the procedure skews the results he will accommodate that.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Good point, 1eye. And it's a good sized study at 250.
I am frustrated by the lack of funding for our researchers.

www.simcoe.com/news/article/1228766--ba ... i-patients

I bolded the part that fits with 1eye's statement that if location/doctor performing the procedure skews the result, Dr. McDonald will acocommodate that.

Didn't the IRB back at King's County Hospital take issue with patients paying their way, so that patients who cannot pay are ... what was the issue ... it was ethics ... patients who cannot pay are unfairly excluded from the benefits of the procedure and patients who can pay unfairly take on the risks or, in this study, patients who cannot pay are excluded from the benefits of receiving follow-up care.

Life, and the government, aren't fair.

1. Early CCSVI procedures are being tested on paying customers.
2. Same customers often must travel, so they pay even more.
3. High restenosis rate and thrombosis means for many it won't work first time, or maybe anytime, for very long.
4. People who cannot pay or cannot travel are often excluded, but sometimes allowed it, at the whim of chance.
5. Professional bickering about legitimacy stands in the way of a fair price, even in countries that allow it.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

question for 1eye...what do you mean " I'm sure if location and doctor performing procedure skews the results he will accomodate that"...referring to Dr. McDonald.