My PPMS looks and acts very differently than my friends with RRMS and SPMS. Our MRIs and CNS fluids look different and I know of no one with PPMS who has experienced benefit from CCSVI surgery. If we are allowed to participate in drug trials we never any of the benefits the other forms of MS may. I welcome research and treatment focused on PPMS because I don't believe we will get any help until we ARE treated differently than other forms of MS. I always welcome Marc's blog for his PPMS perspective. I have recently started traveling from Western Canada to NYC every few months (at great expense, sigh) to undergo intrathecal methotrexate treatments at Dr. Sadiq's clinic. It will be several months before I Know if it is helping but this article is encouraging.
Kathy, 49 with PPMS,full time scooter.
Married to a wonderful man, mother to a darling 9 yr old boy