HappyPoet wrote:Cece, do you know the time period covered by the 23% figure? At one point early on, I remember reading that 50% had restenosed at the 18-month mark. Thanks!
drsclafani wrote:cheerleader wrote:Cece-
I'm just trying to be clear, and not argumentative.
Believe me, I understand how much venoplasty can help....but I want pwMS to have all the information before they get treated.
We have the luxury of knowing MUCH more than we did when Jeff was first treated.
Any where from 25-50% of patients restenose. (Dr. Zamboni says 50% in the above quote.)
Dr. Zamboni says his team is working on understanding why, and how to best address this, and they need a couple of years to create the "turn key" procedure.
Is a trial which does not retreat restenosis, or is not covered by insurance, or provide local follow-up really in a "patient's best interest?"
It may have IRB approval, but that's not the true definition of "controlled study" or one that uses normals as controls. Or a study that covers all the patient's costs and additional retreatment (s).
i have spent a great deal of time communicating with paolo zamboni and others involved in CCSVI. I seriously doubt that he is suggesting what you suggest he is saying
Dr. Sclafani it is my understanding that an increase in blood flow to the brain is the primary goal of treatement so would this also apply to people without MS? I would encourage you and Mr. Zamboni, in order to maintain an optimal level of health, to get angioplasty preformed on the veins in your neck.
Were you and Scorpion away for a while attending an anti-CCSVI convention or something? Anyway, to answer your question, CCSVI may indeed open a whole new field of study in cerebral bloodfllow and its relationship to neurological diseases and cognitive function. A large body of people may end up benefiting from 'liberation'. I guess in the meantime us liberati with MS will have to continue to selfishly enjoy the undeniable abatement of our disease that CCSVI treatment has brought us.Lyon wrote:Cece wrote:I have never heard Dr. Sclafani complain of any of the symptoms of CCSVI.
Should that be taken to mean that "healthy normals" meeting criteria for ccsvi diagnosis in past ccsvi studies HAD previously been experiencing symptoms?
scorpion wrote:Dr. Sclafani it is my understanding that an increase in blood flow to the brain is the primary goal of treatement so would this also apply to people without MS? I would encourage you and Mr. Zamboni, in order to maintain an optimal level of health, to get angioplasty preformed on the veins in your neck.
Lyon wrote: scorpion and I are pro-ccsvi but our outlook in promoting it are a little different than the norm. Crazy fools that we are, we feel that being honest and pragmatic is a better approach than wishful thinking and promotion before proof.
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