MS and CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS and CCSVI

Postby eagle1 » Tue Oct 18, 2011 5:50 pm

My Brother has MS and in a matter of 1 1/2 years he is now in a wheelchair, was unable to think clearly, was argumentative, did realize that he was angry...

I first brought up to his Doctor the Dr Zamboni Treatment that I had read about approximately a year ago....it was met with no cooperation and in fact was told it was not a treatment that he would recommend.

Ok folks here it goes -

I found a location here in town and they performed a Doppler test on my Brothers neck and he had 4 out of 5 indicators for CCSVI. The next step was to locate a Dr that would treat his CCSVI, and we did. The procedure was performed yesterday at 0845 hrs EST. after the waiting period in recovery we took him home and he fell into a very nice and comfortable sleep.

This morning I called to check in and see how he was doing and was met with a very warm, relaxed, non aggressive brother that was so glad to hear from me. He commented that he hasn't felt this good since he could remember and that he was really happy that he was comfortable and not in pain.

This is just less than 24 hrs after the procedure. There has got to be something to this. Why is the Medical field making it so hard for us to make sure our family members get the best care possible?
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Re: MS and CCSVI

Postby munchkin » Tue Oct 18, 2011 6:03 pm

That is wonderful that your brother has had improvements. CCSVI is a very hot topic in many ways. Enjoy the changes and I hope your brother continues to improve.
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Re: MS and CCSVI

Postby Cece » Tue Oct 18, 2011 6:38 pm

I love when people share these sorts of stories. It sounds like your brother is definitely a responder to treatment. :)

The objection from some in the medical field is that there is not enough research yet. My own objection is that there is not enough funding and not enough fast-tracking of that research....
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Re: MS and CCSVI

Postby eagle1 » Thu Oct 20, 2011 12:46 pm

Thank you for the responses, Spoke with family , my brother was asleep, and they are all amazed at what an amazing change has happened. he continues to get better, he sleeps much deeper, is getting stronger and most importantly, he communicates extremely well and he even knows something is happening. He has an appointment with his MS Doctor soon and I cant wait to see his reaction when we tell him that he had the procedure, better yet, I will not say anything and let them see how well he is doing - then I will tell them he had the procedure.

Any positive change is worth it, its hard to believe that the Medical Establishment is fighting so strongly and not even wanting to open their minds to a possible addition to their MS Treatment options...
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Re: MS and CCSVI

Postby munchkin » Thu Oct 20, 2011 2:26 pm

Sometimes the neuro's will talk about placebo effect, don't let that discourage you or your brother. They might also talk about it just being quality of life changes, your brother will need to explain how this has impacted him especially if there aren't any noticeable neurological changes at this time. Those changes may take a while before they can be measured depending on the level of his disability.

The more the Dr's see of people doing well is going to make it more difficult to ignore or dismiss the whole concept of CCSVI. I found my GP was very interested and receptive.

It might help to list what changes have happened and how these have made a positive impact on his life. I am glad to hear that he is doing so well.
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