AFTER 2nd AND 3rd TREATMENT

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

AFTER 2nd AND 3rd TREATMENT

Postby dania » Sat Oct 22, 2011 2:14 pm

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Re: AFTER 2nd AND 3rd TREATMENT

Postby esta » Sun Oct 23, 2011 12:34 pm

dania,
this wreaks of negativity
i may be the eternal optimist
but...we have one life
i would hate for anyone to see this, and just give up...
i gave up watching it...
she's young and maybe she has time, others don't
i say , never give up

little improvements are better than none
the odds are out there, its improving every month
this will be my 3rd time in feb, this time i've chosen dr arata, and and and
a guinea pig i maybe, but, so far this is the best situation - hopeful
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Re: AFTER 2nd AND 3rd TREATMENT

Postby dania » Sun Oct 23, 2011 12:57 pm

Esta, this is what can happen. You call it negative, I call it honest. And most people would prefer not to see it. And I do not think she has given up , not yet anyways. And it is not uncommon. You just do not see posting of this outcome very often. I hope your treatment with Arata helps you. There are many that have gone to him having first tried in another facility. He could unfortunately do nothing for me as all 3 veins are now blocked. Little improvements are better than none. But with zero blood flow in my 3 veins I am getting worse and worse. A man tried 10 times with Arata, he finally had a vein transplant at the Mayo and is doing well after 2 months.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby esta » Sun Oct 23, 2011 1:41 pm

yea, its all choice,i guess
i just wanted to get my point across
who would you choose?
still have 2 untouched veins, so i'm hopeful...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Re: AFTER 2nd AND 3rd TREATMENT

Postby dania » Sun Oct 23, 2011 2:00 pm

Esta, are you asking which doctor I would choose? I think Arata is an excellent choice. Having said that I think you have a better chance of getting lasting improvements with the first time, that is what Arata told me and many who have had multiple procedures notice that they improved with the first and got little or no improvements with following procedures. I think most doctors recognize that valves play a part. And it seems that those that got treated and their valves were addressed with the first procedure do better than those of us that were treated earlier on and the valves were not addressed.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby hope410 » Sun Oct 23, 2011 2:42 pm

Did anyone catch the name of the vasodilating supplement she said was helping her?
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Re: AFTER 2nd AND 3rd TREATMENT

Postby Jugular » Sun Oct 23, 2011 3:08 pm

Proargi-9 which is a name brand for L-arginine.

I've been taking it too.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby Cece » Sun Oct 23, 2011 3:43 pm

dania wrote:And it is not uncommon. You just do not see posting of this outcome very often.

In a year or two, if we can start seeing publications with follow-up data, we could find out what percentage of patients getting treated end up with the different possible outcomes. It's frustrating not having numbers yet.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby hope410 » Sun Oct 23, 2011 3:53 pm

Thanks, Jugular. I already take that too but haven't noticed any changes to my health from it at all.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby esta » Mon Oct 24, 2011 8:41 am

i wonder about untouched veins, say the other side and the azygos, if further treated with them included, would there be a better outcomes?
yes dania, would you try with him again?
i've done my research, and choose him because of the valves thing. i'm thinking because the ljv and azygos have never been worked on, i may see fabulous lasting results...i chose to think this way...so wish me luck.

my greatest fear is complacency with ms people, and this hurdle can't make it to the gate unless we keep rallying, and not get caught in the webs of despair, i believe the jury's out, and the fat lady has sung, we will overcome, and, yes, there's always some it doesn't work for. but in the long run we've got to believe this is better than anything so far, considering the casualties of the crab drugs.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Re: AFTER 2nd AND 3rd TREATMENT

Postby dania » Mon Oct 24, 2011 8:52 am

Esta, in my case angioplasty is no longer a possibility. My veins are 100% blocked with scarring. Unless they come up with something that can remove the scarring and then as Arata said to me and then what? What is going to keep the vein open an not collapsing. That is what Arata told me. At this point my only option is a vein transplant.
I sincerely hope you do well. And seeing as you have 2 veins that have never been touched you will most likely see improvements.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby MrSuccess » Mon Oct 24, 2011 10:14 am

dania , do you have collateral blood flow ? Has this been charted ?

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Re: AFTER 2nd AND 3rd TREATMENT

Postby dania » Mon Oct 24, 2011 10:31 am

I would suspect that my collateral blood flow is not good. Not good enough for sure. My face, tongue are very swollen. A cardiologist once told me that if blood flow is restricted these are the symptoms.
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Re: AFTER 2nd AND 3rd TREATMENT

Postby dania » Mon Oct 24, 2011 10:52 am

Wow did Catherina really hit the nail on the...
Susan Keller 2:39pm Oct 24
Wow did Catherina really hit the nail on the head. I and several others DO NOT comment on posts by MSers and she said why. I feel no different and I think everyone should take a deep look inside themselves
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Re: AFTER 2nd AND 3rd TREATMENT

Postby Lyon » Mon Oct 24, 2011 11:33 am

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Last edited by Lyon on Wed Nov 09, 2011 8:08 pm, edited 1 time in total.
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