I have to say that I have heard of numerous people here in Australia who have been tested for CCSVI using Doppler analysis. The Doppler study indicated no CCSVI was present (and the analyst is quite experienced, trained remotely in the Zamboni Doppler protocol). Each party was fortunate enough to access an IR willing to do a venogram to find out what was really going on. You guessed it - in each case the patient had CCSVI (and the occlusion was in an awkward locale).
So what's going on? Was the Doppler ultrasound substandard - or is it a simple fact that you'll see more by venogram? Zamboni himself has commented that MS patients have CCSVI if they have two or more "positive" tests during the Doppler ultrasound...but the same two tests cannot be relied upon for the entire CCSVI patient population.
Myself - I had a pretty nasty stenosis in my right internal jugular (valve region) which was so clear on the MRV...but was not so clear in the venogram. Of course, I could feel it and pinpoint the exact location. Took the IR three venograms to be able to see what I could point to with my finger. By the third occassion, he was using the Doppler studies, and the MRV in conjunction with his venogram. And he asked me what my symptoms were
I told him the right side of my head felt like it was in a vice, and i had the "classic" internal jugular pressure on my jaw.
I reckon the patient is an under-utilised resource in the diagnosis of CCSVI.