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Cindy Fulton's Story

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Cindy Fulton's Story

Postby dania » Mon Nov 14, 2011 9:35 am

I would like to share my story with all of you as I think maybe it could help with the CCSVI fight. I live in Northern Ontario and have been fighting MS for 22 years. I am almost 50 and last summer I started to progress really fast and was feeling worse everyday. I tried all of the MS injections but could not take any of them as they all made me feel worse. In August I fell and scraped my knee, no big deal. By the 3rd week of august it looked infected so I went to my GP and he did a swab. Results would not be back for a few days so he gave me an antibiotic cream. The next morning I had my daughter call 911 and tell them that her Mom was going into shock. By 10:00 that night I was in a coma and was flown down to Toronto. I had Strep A, septic shock. All of my major organs failed. I was in a coma for 3 weeks and miraculously woke up. The amazing thing is that I no longer had any MS symptoms and I still don't.
While in a coma I had 4 blood transfusions and then I had another one when I was awake. While I was asleep they also cleaned my left jugular and other veins for kidney dialysis. After I woke up they cleaned my right side for a new line and I actually heard them say that they ran into a stenosis and that they would have to wait until the next day when the lead radiologist was in.
Anyway, it is now 4 months later and I still have no MS symptoms at all. I feel as though I woke up from my coma as a new person.
The great thing about this whole thing is that it was all covered by our hospital plan as the procedures were done for another illness not MS
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Re: Cindy Fulton's Story

Postby PointsNorth » Mon Nov 14, 2011 10:02 am

Thanks Dania. This needs to be verified and documented.

PN
Albany 2010. Brooklyn 2011
Calcitriol+D3 2013-
Hurry up and wait.
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Re: Cindy Fulton's Story

Postby cheerleader » Mon Nov 14, 2011 10:07 am

Thanks, Dania--
Remembered this from earlier in the year. This was re-posted on Facebook by Michele, the admin for the CCSVI in UK group. It's completely anecdotal, and has been posted and reposted online by others, it's not really verifiable. Stories like this are interesting, but the only way forward will be clinical trials.

Here are the FB links for those interested--
UK
https://www.facebook.com/notes/ms-ccsvi ... 1710020713

Eire-the original post
https://www.facebook.com/note.php?note_ ... 3315147738
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: Cindy Fulton's Story

Postby dania » Mon Nov 14, 2011 10:09 am

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Re: Cindy Fulton's Story

Postby Cece » Mon Nov 14, 2011 10:32 am

I am not sure what she means about them having "cleaned" her left and right jugulars. Did they use angioplasty? Anyway it's notable because of the conditions in Canada, where you can get treated for central venous stenosis related to other medical conditions but not for CCSVI.
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Re: Cindy Fulton's Story

Postby lovebug » Mon Nov 14, 2011 8:12 pm

OMG!!! What a truly amazing story. This sounds like something we only see in movies. I hope good health continues for you....
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Re: Cindy Fulton's Story

Postby Nasti » Wed Nov 16, 2011 9:30 am

amazing story, wish u all the best!
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