This Is MS Multiple Sclerosis Community: Knowledge & Support

Just 4 days left until our CCSVI 36 hour Expo begins! We start broadcasting at 10 AM (PST) on Sunday, November 20 and don't stop until 10 PM Monday November 21.

This 36 hour Internet marathon features up to 20 of the leading CCSVI rsearchers and doctors, including Dr. Paolo Zamboni. Dr. Sclafani, who first introduced himself here on TIMS, will be one of our first speakers.

To watch this live event, all you need is your computer and your speakers turned on. It's free and sponsored by the National CCSVI Society.

To get a full speaker schedule emailed to you and the connection instructions for when the Expo begins, go to the National CCSVI website and register.

If you have any questions, PM me (Sandra Birrell) -- I'm organizing the Expo!

Thanks,

~Sandra

I've been stocking up with Alertec in anticipation!

_________________
Albany 2010. Brooklyn 2011
Hurry up and wait.

Hello,

Waiting for sunday and broadcasting eagerly. I registered myself and got "ticket" in my email.. but not list of speakers or instructions to watch live. Do I need any specific instructions or is it just so simple, that I go to webpage and see the show?

I am working to get a full speaker schedule out later today (Friday) or early Saturday. The connection link and sign on instructions for participants will also go out Saturday.

We have been working to resolve some technical issues first, but I think we have everything now good-to-go.

Fingers crossed!!

~Sandra

_________________
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

That is great - I am also interested in the full speaker schedule! Should be a great event.

Cece,

Even Cisco (who we paid to broadcast the Expo) said they had never done anything like this and are very interested. So, we need to keep our sense of humour if technology gremklins invade the broadcast. But we are very, very optimistic we can do it. My fingers and toes are crossed.

Just make sure you're registered and you'll get a full schedule and, importantly, the link to access the Expo and chat. We can't post the links everywhere (we will let the social media family do that for us) because we are going to busy the moment we find out exactly what link to provide. That's why we had people register -- Eventbrite allows us to send an email with a single push of a button to all people registered.

See you online!

~Sandra

_________________
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

http://www.nationalccsvisociety.org/wp- ... hedule.pdf

Sunday, November 20, 2011
**All times are based on Pacifi c Standard Time and are approximate based on speaker time requests

10:00 AM- Welcome to the 2011 NCS CCSVI Expo

11:00 AM- Dr. Salvatore Sclafani

11:45 AM- Dr. Paolo Zamboni

1:00 PM- Dr. Michael Dake

1:30 PM- Dr. James McGuckin

2:00 PM- Dr. Kirsty Duncan
Topic: “CCSVI in Canada: PAST, PRESENT, AND FUTURE”

3:00 PM- Dr. Trevor Tucker
Topic: “CCSVI Reflux, Hypertension, Hypoxia and Scleroses”

3:30 PM- Dr. Diana Driscoll and Dr. Clair Francomano
Topic: “CCSVI, MS and EDS: What are the common links?”

4:30 PM- Dr. Mark Haacke

5:00 PM- Dr. Bernie Juurlink
Topic: “Historical Aspects of CCSVI”

6:00 PM- Valerie MacNeil

6:30 PM- Sharon Richardson
Topic: “A personal CCSVI history and the formation of CCSVI Alliance”

7:00 PM- Joan & Jeff Beal

7:45 PM- Steve Garvie

8:00 PM- Brenda Raven

8:30 PM- Shara Grice
Topic: “Protecting your own and each other’s PRIVACY.”

9:00 PM- Warren Stefanuk
Topic: “CCSVI Alberta”

10:00 PM- Ginger McQueen

10:30 PM- Lorin Powell
Topic: “A peek at life before and after venoplasty from a husband in love all over again.”

11:00 PM- Michelle Walsh
Topic: “You never know how strong you are until you have to be.”

11:15 PM- Debra McDonald
Topic: “Quality of Life With MS”

11:30 PM- Dagmar Lofts
Topic: “Personal Reflections”

THE FUN’S NOT OVER... It continues into
Monday, November 21, 2011!!!Monday, November 21, 2011
**All times are based on Pacifi c Standard Time and are approximate based on speaker time requests

12:00 AM- Jenna Machala
Topic: “Disappointments and Hope”

12:30 AM- Michele Mateus

1:00 AM- Mark Lohse
Topic: “CCSVI Treatment in Poland”

1:30 AM- Paris Michaelides
Topic: “MS drugs? I don’t think so!!!”

2:00 AM- Kerri and Helen from CCSVI Australia
Topic: “The CCSVI Hot Seat”

5:00 AM- Dr. Brian Montague

5:30 AM- Terri Sleeva
Topic: “Terri talks about her experience with CCSVI treatment.”

6:00 AM- Dr. Gregory Soares
Topic: “CCSVI: A roundtable discussion with Interventional Radiologists”

7:30 AM- Dr. Bill Code
Topic: “Restenosis, Anticoagulation, and Medical Approaches to CCSVI”

9:30 AM- Dr. Michael Arata

10:00 AM- Dr. Todd Harris
Topic: “Basic CCSVI treatment and advanced techniques”

10:30 AM- Dr. Joseph Hewett
Topic: “The Haacke MRI and its importance to the MS patient.

11:00 AM- Dr. Gary Siskin

11:30 AM- Dr. Nina Grewal
Topic: “Pre-Operative and Post-Operative CCSVI Care”

12:30 PM- Adele Kulyk and Tina Leckie
Topic: “Living Healthy with Your Chronic Condition”

1:00 PM- Dr. Maciej Zarebinski
Topic: “Angioplasty for CCSVI - successes and pitfalls - AMEDS experience.”

2:00 PM- Francine Dechaines and Christopher Alkenbrack
Topic: “BILINGUAL: Refl ections on an early treatment experience”

3:00 PM- Carol Schumacher

3:45 PM- Lori Lumax

4:30 PM- Janet Grieco

5:00 PM- Michel Sastre, Landon Schmidt, and Lorin Powell
Topic: “CAREGIVER AND PARTNER HOUR”

6:00 PM- Marie Rhodes, RN
Topic: “Social Media and CCSVI: The Beginnings, with Q&A”

6:30 PM- Stacy Lee Saman
Topic: “From Wheelchair to Goth Boots; Back, and Back Again!”

7:00 PM- Dr. David Williams
Topic: “‘Healthy-spring’: How CCSVI has changed our path to health.
A Dentist’s perspective.”

8:30 PM- Nicky Addison and Bev Bentley
Topic: “CHILDREN OF CCSVI HOUR”

9:30 PM- Expo Closing

Add Clive Beggs at 3:30 am (PST) on Monday November 21.

We are working hard to clear up the last few technical gremlins!

Sandra

_________________
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />

Oh that's early but he's a great speaker. I've seen his presentation from the NY symposium.
Much applause to all the speakers for participating in this and Sandra and everyone involved with putting this on!! It's packed right from the beginning. Dr. Sclafani leading things off! Dr. Zamboni himself at 11:45 am! Dr. Dake, Dr. McGuckin, Kirsty Duncan, Dr. Diana Driscoll ... it just keeps going.

Here's wishes for smooth sailing with any gremlins either asleep or too interested in the programming itself to dare interfering.

The Expo is still ongoing through 10 pm PST tonight. Dr. Siskin is speaking right now. Very informative!

They are also doing a raffle. For every $5 donated, you get a chance to get Dr. Zamboni's scarf that he wore in the original CTV show. Oh wow. I will be putting an entry in but I expect the odds will not be with me. That scarf would have pride of place up on my mantle! What a piece of CCSVI history.

edited to add:


This is something that is already on my mantle. I bought this little boat at the south street seashore in Manhattan, when I was in NY for my procedure in Brooklyn with Dr. Sclafani. It represents the CCSVI journey we are all on. The newspaper hull reminded me of all of us here at TiMS.

Here is the link for where to donate:
http://ccsviexpo2011.eventbrite.com/

Just found out about this 'CCSVI Expo' 2011 ... Great Idea!!!

For those Tech challenged like me...here it is online
... http://www.ustream.tv/channel/ccsvi-expo-2011

_________________
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well