Inclined Bed Therapy (IBT) Feedback Request

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Inclined Bed Therapy (IBT) Feedback Request

Postby NHE » Wed Jan 25, 2012 3:35 am

Amir wrote:I have recommended IBT to all my MS patients. I shall let you have any feedback that I get.

From What I read in this thread it appears to be useful in other conditions also. I have many ME/CFS patients and others with a host of other problems. I shall try and ask them to try it out also and shall post any feedback I get in the coming months.


I'm curious how you would determine which treatment is actually helping them, IBT or the dental appliances?

NHE
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby Amir » Wed Jan 25, 2012 3:50 am

NHE wrote:
Amir wrote:I have recommended IBT to all my MS patients. I shall let you have any feedback that I get.

From What I read in this thread it appears to be useful in other conditions also. I have many ME/CFS patients and others with a host of other problems. I shall try and ask them to try it out also and shall post any feedback I get in the coming months.


I'm curious how you would determine which treatment is actually helping them, IBT or the dental appliances?

NHE

Patients are undergoing a number of treatments at a given time. Having their Atlas adjusted, having various dental appliances, having CCSVI visiting alternative practitioners like acupuncture, massage etc.

It is not always easy to tell what is benefitting the patients but by trying to do one thing at a time it is fairly easy. I also already know how well the patients are doing. If I then subject them to IBT they could report a worsening or an improvement. They can try a night with IBT and one without while still keeping the appliances in. Luckily the patients are very astute and can discern what is helping them and what is not.
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Wed Jan 25, 2012 1:53 pm

Doctor Amir

Thank you for recommending IBT.

My GP also recommends IBT for his patients, he adds, the majority of my patients using IBT do not visit me any where near as often as they had previously and for me this is good news.
If you decide to advise IBT for Varicose veins, could you ask for photographs to be taken before and after 2 weeks then monthly, if only for your own satisfaction that this therapy does have a significant restorative effect on VV. some interesting photographs in this thread on another forum: http://www.thenakedscientists.com/forum ... c=9843.250

I look forward very much to hearing from in due course.

Best wishes Andrew
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby Tore » Sun Jan 29, 2012 11:24 pm

I elevated the head-end of my bed frame (slatted frame) by ca. 25 cm (ca. 7° ramp, bed length 200cm) some 7 days ago.
ever since I cannot sleep through the night and wake up 2 to 3 times per night.
I also kind of slide down the bed during the night.

I find it has helped me somewhat with my symptoms (fine motor right hand and drop foot got better) but the sleep
deficit is taking its tool when it comes to concentrate at work....
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby danegirl » Mon Jan 30, 2012 12:46 am

I have slept inclined 15 cm now for well over a year. I simply asked my son to saw off the legs on one end of my bed - so I can never go back to sleeping flat again. And I don't want to. I sleep like a baby all night. And feel well rested in the morning. Also I rarely have to go to the toilet during the night, and only once at most - it was 3-4 times before.

So sleeping inclined is working well for me. I will never go back to flat.
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Tue Jan 31, 2012 2:38 pm

Wow that's some slope your sleeping on, try 6 degrees or less, not surprised sliding down the bed, though a friend sleeps at this angle and loves it.

Can you elaborate more on your fine motor and foot drop improvements these are very interesting developments and I'm sure the forum would like to know more.

Thanks for the update

Andrew

Tore wrote:I find it has helped me somewhat with my symptoms (fine motor right hand and drop foot got better) but the sleep
deficit is taking its tool when it comes to concentrate at work....
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Tue Jan 31, 2012 2:40 pm

Danegirl

Thanks for the update. Have you noted any more improvements or relapases during this time that you can share with us?

Andrew
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Tue Jan 31, 2012 2:49 pm

Amir Here is a template for your patients to report changes and to help to identify changes they might not notice otherwise. Only a suggestion but you might find it useful: http://www.inclinedbedtherapy.com/index ... emid=30#p2
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby Amir » Tue Jan 31, 2012 3:16 pm

AndrewKFletcher wrote:Amir Here is a template for your patients to report changes and to help to identify changes they might not notice otherwise. Only a suggestion but you might find it useful: http://www.inclinedbedtherapy.com/index ... emid=30#p2


Thanks Andrew I shall pass it on.
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby Tore » Wed Feb 08, 2012 5:39 am

with improvements in fine motor skills right hand I meant less numbness and quicker reaction, and less stiffness in the right leg.
However those improvements where rather fluctuating.

As advised by Andrew I lowered the head end by 8cm resulting in an elevation of now 17cm at the head end of my bed (slope ca. 5°).
I can now sleep through the night and dont slide down anymore.
Right now I'm feeling quite good, hardly noticing any symptoms.

BTW this week I was tested negativ for CCSVI, so I dont know if IBT is the right thing for me.....
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Wed Feb 08, 2012 8:48 am

Tore, thanks for clarifying the fine motor improvements.

Glad you find the reduced angle has helped.

IBT was shown to be effective for people with ms long before CCSVI became mainstream. IBT improves circulation and I suspect helps to restore damaged nerves-- given that it also works with spinal cord injury- and I doubt CCSVI is a contributing factor in a damaged spinal cord.

Stay with the programme and please keep us informed of any changes, negative or positive.

Best wishes

Andrew
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Sun Mar 04, 2012 11:49 am

Dr Amir more than a month has passed since your first post about recommending IBT to your patients. We should be hearing from them with regards to changes and would anticipate some feedback from those who have confirmed they are sleeping inclined. Have you received any feedback and if not could you follow this up with a phone call asking for an update from your patients using IBT using the check list template?

Best wishes

Andrew
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby williamducey » Thu May 03, 2012 6:02 am

As of last June I have been sleeping in an inclined bed (30 degrees avg)every night. It has been almost a year. I have over that time regained my contience(dont weear diapers anymore) my sense of balance has been regained. I do not twitch any longer. I have an MRI that I will pick up monday. It will have conclusive info. I have worked on this for a year. It will be a form of therapy for some with "MS"
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby AndrewKFletcher » Tue Jul 24, 2012 9:27 am

As of last June I have been sleeping in an inclined bed (30 degrees avg)every night. It has been almost a year. I have over that time regained my continence (don't wear diapers any-more) my sense of balance has been regained. I do not twitch any longer. I have an MRI that I will pick up Monday. It will have conclusive info. I have worked on this for a year. It will be a form of therapy for some with "MS"


Hi William, thanks for posting your update. This is indeed excellent news, can you share with us the results from your MRI?


Kind regards

Andrew
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Re: Inclined Bed Therapy (IBT) Feedback Request

Postby Amir » Tue Jul 24, 2012 11:27 pm

Excellent to hear this. I shall ensure that all my MS patients are using IBT also.

Many thanks for posting.
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