AndrewKFletcher wrote:Link to this post 01 Jul
Haven't been here for a long while, but never forgot about this site or its importance!
It's been more than two years of IBT for me with no other forms of 'treatment'. I have had zero relapses and am much steadier on my feet, have normal heat tolerance, and no longer worry about becoming 'overheated' when exercising.
In fact, I have figured out that as long as I am doing some form of exercise that is fairly vertical, I'm ok. This has been heartbreaking for me as a wannabe masters swimmer, who swam in high school and college, but if I want to feel that "OMG, my head is going to explode from the pressure of too much blood flow to it with no escape" feeling, all I have to do is swim four or five laps without stopping. It's amazing that no other form of exercise gives me that terrifying sensation. I attribute it to being flat while swimming. I tried once again about four months ago, and never again. I'm terrified of having a stroke. I wonder if anyone else has ever noticed this?
So walking and biking, it is.
I'm sorry I never did all the measurements and regular check-ins that would have been really helpful here, but I just never made the time. I am thrilled with my results from IBT! I wish I could figure out how to get the letters MS out of my medical records as I now know that vascular issues have been my problem and my immune system works fine.
The benefits can be amazing. If only I'd had it ten years ago! Don't wait until your walking is gone!I had seriously considered having the angioplasty surgery, but no longer feel a rush to do so. It would be great to sleep flat again, but having surgery in order to be able to do so? I think not.
Anyway, husband's complaints not withstanding, I loved my raised bed!
1eye wrote:I would, but my wife hates it. Who wears the dress in my family?
AndrewKFletcher wrote:As of last June I have been sleeping in an inclined bed (30 degrees avg)every night. It has been almost a year. I have over that time regained my continence (don't wear diapers any-more) my sense of balance has been regained. I do not twitch any longer. I have an MRI that I will pick up Monday. It will have conclusive info. I have worked on this for a year. It will be a form of therapy for some with "MS"
Hi William, thanks for posting your update. This is indeed excellent news, can you share with us the results from your MRI?
I truly have had a wonderful experience sleeping inclined since February 1998 when I was diagnosed with Multiple Sclerosis. At that time I was looking for information and ran into someone with similar experiences to mine - I found someone who had some pain and other symptoms. She was recommending sleeping inclined and put me in touch with Andrew Fletcher.
What Andrew offered involved no pain or money (my kind of therapy!!) I used a couple of large books to prop on the frame of my bed (how easy!!) The very first night, the symptoms subsided. That was amazing - but my husband complained about sliding down. I thought - no problem, it worked. I removed the books and slept flat again. The pain came right back! I suggested my husband could sleep on the couch or get over it.
We have both been sleeping inclined ever since. My neurologist asks me during my annual visit how I'm doing. I've had subsequent MRI's and there is no sign that I'm progressing negatively. The doctor reminds me that MS isn't supposed to get better (but I appear to be!)
Beginning in a few days I'm going to start toward a degree in nursing. My doctor is encouraging my studies - he doesn't foresee any problems with this rather serious endeavour. The MS is not a problem for me. I try to stay in touch with my body and take it seriously if it tells me I'm tired or too hot or cold. The best thing for these "problems" is to go to bed and get some rest. It has never failed to restore me to where I was before I was ever diagnosed with this "debilitating" disease!
Dear New Pathways,
A couple of weeks ago I started
using Inclined Bed Therapy, having
seen it in New Pathways. I’ve got
an adjustable bed so have been
experimenting with height and
about 6 inches seems to work
best for me.
I’ve had a couple of nights with
NO toilet trips, my energy levels
have gone through the roof and I
haven’t had to sleep during
I would recommend it.
Users browsing this forum: AMcG