This Is MS Multiple Sclerosis Community: Knowledge & Support

I would like to know the opinions of you lovley (knowledgable people on to specific topics)

1 - Is CCSVI a condition of the jugulars and azygous, or are more veins involved (renal, illiac etc). I find it hard to beleive a chronic condition targets only 2 veins.

2 - Does IVUJ always give benefit to treatment, or does it only require use in a limited number of cases

Perhaps in time we might find that CCSVI is a condition affecting the internal jugulars and the azygous only -- to fit the "cerebral" part of CCSVI. But just as there are different descriptions of MS - RR, SP, PP -- the doctors might create a new description. Maybe they'll use CVI - chronic vascular insufficiency - that will include other parts of the vascular system.

Currently, some doctors are routinely looking at the renal and iliac veins and dural sinuses. Currently, there seems to be little correlation between where blockages are found and a patient's symptons. Now that there is a wider pool of doctors who also capture information and share it, the definition, along with the treatment protocol, may begin to be more precise and have better outcomes.

In 5-10 years, this may be a very standard and well researched method of treatment for a whole variety of conditions. For those who cannot wait that long, be sure to find a doctor who will add your case to the growing volume of data to be analyzed.

I'm guessing that you meant "IVUS" instead of "IVUJ". IVUS isn't necessary unless it is. If you're lucky, your doctor will find your problem(s) using less expensive and faster methodology. IVUS is an additional tool to find blockages and take measurements. Some cases are simple and won't require it. Right now, there's no way to tell in advance who will require it.

in a review of 30 random azygous vein abnormalities, 25% were not seen by venography, but only by IVUS.

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Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com