PABCalifornia wrote:Dear CureorBust:
I convinced myself further in the choice to remain silent because it seemed insensitive to discuss something that may benefit many people and then reveal that it seems to only be available in London and it's not free. Last weekend, however, something happened which made me realise that by keeping silent I am perhaps being even more unfair.
If there is a chance that after the initial 13 years of battling, the last two years of my progressively improving health could be experienced by other MS sufferers then perhaps I could help as only an accountant can. I can recount my experience, perhaps increasing demand for the type of service that Dr Amir provides so that the profit motivated medical industry in the US takes notice, and highlight the return on investment which might be realised if well controlled clinical study were to be funded by the right organisation. So, we shall see.
It's interesting you went through this thought process.
My first thought was to broadcast to as many people as possible what we'd found. At that point I hadn't even considered the issue of Dr Amir being one person and in London, it was when we started getting the first repsonses and requests for further information that I wondered if I'd actually been a little thoughtless.
The more I thought about this the more I realised it would be unreasonable not to let as many people as possible know about the treatment, not only that but also publicly post a diary on how Emma was reacting to the treatment in real time.
Of course, this opens us up to support and critism equally.
I encouraged Dr Amir to post here and I'm delighted he is. You can see from his posts he's not the usual run of the mill Doctor. If he was he would proabbly have never taken the course through life that he's on now. He has a natural curiosity about any and every non invasive non drug related treatment that can help patients. In a word he is fanatical about it.
With this comes the risk that some people will see him as out of the ordinary, which he is, but we're all the better for it. It's people that chose to think differently that make the difference.
With Emma we are posting details of her treatment from day one for all to see with Amir's blessing, that's a brave thing to endorse and he's putting his head on the block by doing so.
Unlike CCSVI, jaw misalignment and spine problems are not an "instant" fix. It takes time. In Emma's case we have two to three months of manouvering teeth into a postion where the jaw itself can start to be addressed. In total there could be two or three years of treatement to Emma's jaws where they should be.