This Is MS Multiple Sclerosis Community: Knowledge & Support

so good to hear good news.

good news about her atlas!

That's great news.
Is there any symptom stability?
Has there been any way of showing that the treatments are doing the trick?
I am not asking as some would say a critic or nay sayer, I am a fan of having some support to go ahead a try things.

Many of us in NZ are believers in our on set being from external or alignment issues, we need to have some way of showing that others have regained health from these alternative knowledge sources.

Monthly updates on Emma's treatment being posted on this thread:-

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18706.html

The biggest and most obvious improvement is the reduction of Neuralgic pain which is unquestionably related to adjustments/appliances in Emma's mouth.

This is the ultimate question.

I feel there is some connection between CCSVI and upper cervical/jaw problems. What that connection is I don't know, but it makes sense in my non medical mind.

I see CCSVI as the equivalent of lancing a boil - there is instant relief in cranial pressure amoungst other things, but I'm not entirely sure it's solving the problem. I feel it's treating a symptom.

Cervical and jaw misalignment could be treating the source of the problem, our hope is it stops progression and allows the body to reverse the damage done in it's own time. That's going to take a long time for someone like Emma who has had 15 years of symptoms.

So I think there's a logical assumption that both treatments may be the way to go. Get everything skeletal put where it should be, then get the viens looked at. Makes sense to me. It's a shame we may have done that the wrong way around though.

I find this fascinating. It also makes sense to me although I've always assumed I was pretty ok, having been seen by a chiropractor before a pediatrician. Many of those early chiropractors used the Grostic method as well. However, I have always believed that 2 frontal impact car crashes within 4 months in 2002-3 were somehow the trigger for my spms although I'm sure my very low D levels were not a plus. Can it be that even after all of those years of adjustments, there is still a jaw problem?

teen years, had 4 premolars removed, wore braces, trained to brown belt level in tae kwon do, lots of hiking, canoeing
17 diagnosed with 'walking' mononucleosis from blood test, only brief effect was petechiae on arms.

1987 got married and moved to Germany, hiked a lot
1990 had son, saw chiro afterwards for sharp low back pain
1997 moved to US, had 2nd son--prob very vit D deficient

Dec 1997 Optic Neuritis, saw specialist was told it often resolves by itself, it did.

2002 frequent falls where left ankle/leg would twist or collapse. Attributed to weakness from earlier sprain.

Nov 2002 Collision with stopped car -- (sounds bad, but wasn't my fault!) after paperwork, went to chiro

Feb/Mar 2003 Collision with airbags deploying, saw chiro same day, had numbness in left hand, last 2.5 fingers (this gradually spread to whole hand)

Sept 2003 spinal mri showed 'white spots'--probable ms

From that point on, I have experienced a slow gradual decline. First started using a cane for extra balance. in fact in 2005, I forgot it while loading the car to get to the airport, never used it in the house. Gradually added rollator/wheelchair. Now need rollator in house and w/c for any distances.

2006 Had amalgams/root canals(2) removed

Was treated for ccsvi in Frankfurt in 2010 and again by Dr Sclafani in July 2011. Results were lessened fatigue, increased mental clarity and concentration although I did have 2-3 hours of leg strength after the 1st round. I never took any monster ms drugs but I did take 4AP until July 2011. I only take LD aspirin now. Moved back to Germany in 2011.

Hi, I email with Dr Amir occasionally, though I am from the US and he is in the UK. He recommended this thread for me to learn about his method. I work with a chiropractor but we are soon to rope in a dentist, once we find one willing to try this out.
Age 13-35 severe headaches

Age 21-37 High stress job and little sleep, put all my symptoms to that. Weak left arm, general muscular weakness and fatigue. Lots of coffee.

Age 35 optic neuritis, various parts went numb, trouble walking, many tests, RRMS diagnosis. All symptoms went away eventually.

Age 44 Deaf in one ear, dizzy, trouble walking. All symptoms went away eventually.

Age 47-49 transitioned to SPMS. Various remedies, including CCSVI, supplements, stem cells. EDSS 6.5

In looking for improvements with Emma it's been easy to overlook something rather obvious since her first appointment with Amir in early December.

Namley that Emma has had no progression of MS in the last 5 months.

Update on this thread:- chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18706.html

that is really good news. very happy for you and emma. thanks for keeping us informed.

Began reading this interesting thread and became a bit confused when I got to the part where an article by one of Dr. Amir's patients is reproduced. The doctor's comments which follow include the following quote: "While I can understand the patient’s sentiments, I would be most reluctant to raise hopes for millions of sufferers of this serious condition. I can confidently say that persons suffering from the extreme form, which is Amyotrophic Lateral Sclerosis, cannot be successfully treated with my methods. With milder cases, especially for those where the condition has not been long standing, this may be a breakthrough. " (sorry don't know how to use the quote technology on this site)

Is Dr. Amir stating that he believes MS to be a less extreme form of ALS? I know the doctor is not claiming to be an expert on MS...but I find it a bit disconcerting. Perhaps I am misunderstanding something?

I have been recieving C1 adjustments and I also have TMJ problems, so the topic is of interest.

Hello
I wrote that article some 10 years ago after successfully treating my first MS patient who I am pleased to say remains well to this day. It was also written in view of another close friend who died of ALS. I worked hard to see if my treatment could help but it did not.

I think MS and ALS are more likely to be distinct entities with evidence that ALS may have its origins In toxins found in sea food (http://discovermagazine.com/2011/may/22 ... parkinsons)

MS is more likely to be a consequence of cranio dental and skeletal asymmetry and treatable especially in the early stages. I however give no warranties but experience with treating a number of patients in the recent past appears to confirm my conjecture.

Please also read this thread:

chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18706-30.html

Dr Amir,
I was wondering what your opinion is of "face pulling" (with a helmet and a retainer) to pull the upper jaw (and cheekbones) forward thus allowing the lower jaw to swing forward. Said to improve facial balance (cosmetic improvement as well, supposedly) This is to rectify the recessive jaw problem that Weston Price observed with the consumption of a "modern" diet. I have been considering this treatment here in North America. Would it be contra-indicated if one were to come and try your approach? Or could the 2 treatments work together?

I have somewhat flat cheekbones so I suspect that the cheekbones also have to come forward and not just the upper jaw. I also have narrow arches top and bottom (4 wisdom teeth extracted at 17 - were impacted; upper #5 extracted for orthodontics at age 32 - now upper jaw is flatter on one side, but teeth are straight).

Injuries: 2 smacks to back of head - fell backward on ice at age 9, car accident at age 16 (mild concussion). Eyes noticeably uneven. Chronic low energy (except when I was pregnant - that is when I got a glimpse of what normal was like), comes-and-goes sciatica, food allergies, poor posture, cold hands and feet, high miopia, migraines. Used to have chronic back pain between shoulder blades but I have more or less eliminated that by sleeping with no pillow - strange, huh?

Hello
I have many enquiries about the use of the helmet to pull the upper jaw forward. I pioneered this some 10 years ago to negate the negative outcomes of using a conventional Reverse Pulling Head Gear which always put pressure on the forehead and the cheekbones. (It was also a much cheaper alternative costing $25 for the helmet instead of $125 for the previous type of headgear)

Its use is limited in the absence of full orthodontic retreatment and infact very dangerous.

Pulling the back teeth forward when they have already been pulled forward during previous extraction orthodonticts (impacting the stability of the Sphenoid bone) would further destabilise cranial symmetry.

The asymmetries of the teeth and jaws as you describe are complex and need very careful evaluation and correction. The correction of the jaws often corrects the asymmetric Atlas and hips of patients but the treatment is extremely subtle as many of my patients will testify and cannot be slap dash or corrected by a single approach.

Someone sent me this very interesting link this morning which needs to be read a couple of times. What is interesting is that these very eminent surgeons appear to TOSS out the exclusive immunologic origin of MS with their TOS findings.
I am still in the process of digesting it and some of you may benefit by firstly getting a Chiro or Osteopath to check that you do not have a hypertrophied Scalene muscle or 1st rib to exclude TOS as a cause of your symptoms.

http://cirugiavascularactual.blogspot.c ... s.html?m=1

Very interesting. I know I don't fully understand it but raynauds got my attention. I didn't have any problems with raynauuds this past winter, since ccsvi. I wonder if that is another positive outcome? It seems to me that this could be another thing to check. Also, my left hand involvement started with the 5th, 4th and half of the 3rd digits. The 5th is still markedly weaker than the 2nd. But then they say there isn't much of a connection with lower limbs/proprioception so it is still only another puzzle piece, imho.

I assume that there could be TOS/ms with atlas problems as well and definitely with dental distress. I guess there is still the question of whether ms exists as an entity or whether it is simply a cumulative series of unfortunate events.