CCSVI in the UK... treatment in Egypt

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI in the UK... treatment in Egypt

Postby Cece » Thu Dec 01, 2011 11:43 am

As remarked, every catheterization and ballooning impacts the veins in a deleterious way

Either the jugulars matter or they don't.....
I had a 99% blockage in one jugular and a 80% blockage in the other jugular. Either having blocked jugulars has a health consequence and I was right to get that cleared, or it doesn't have a health consequence and it wouldn't matter if the veins were damaged and I acquired a 100% occlusion in a jugular, since I already had that.

It is unsupported to say that every catheterization and ballooning impacts veins in a deleterious way. If this were accurate, there would be no angioplasty done at all. My veins were impacted for the better, not the worse.
However I did start to think that i may be rushing in to things too quickly and ought to weigh up ther pros and cons. There is so much information out there on all this stuff and my head is spinnng to be honest.

There is no rush, especially if your health is stable. Learn as much as you can, try and separate facts from opinions, get tested for CCSVI without making a commitment to act on that testing.....
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MarkW's opinion

Postby MarkW » Thu Dec 01, 2011 3:37 pm

To contact me please e-mail with your background, e-mail and phone number.
I am happy to talk to pwMS trying to decide net steps.
Mark Walker - Oxfordshire, England. Retired Pharmacist. 16 years of study about MS.
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Re: CCSVI in the UK... treatment in Egypt

Postby BalsaBoy » Thu Dec 01, 2011 5:13 pm

I think you should wait a while tufty1. Dr Zamboni's currently trying to develop a stent specifically to keep jugular valves open and this would really help with the prevention of restenosis.

I was done in Edinburgh, Scotland, about a year ago and did quite well for a couple of weeks. It definitely wasn't placebo because I didn't notice any difference until the next morning when I found it much easier to swing my legs out of bed. Unfortunately, it didn't last long and, sure enough, when I received my follow up Doppler was told my valves had closed almost shut again.

Anyway, I suspect that in the next few years there are going to be more options open to both of us and, who knows, the price might even come down!

Good luck with whatever you decide to do.

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Re: CCSVI in the UK... treatment in Egypt

Postby tuftyone » Mon Dec 05, 2011 2:47 am

thanks to you all for your input.

You're right in that emotion needs to be put aside when considering this treatment; which is difficult as we all want to feel better right? The real trouble is that I agree with everyone! The theory all makes sense to me, but any treatment like this surely involves risks; they just need to be weighed up and thats the hardest thing.
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