This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 10:52 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 19 posts ]  Go to page Previous  1, 2
Author Message
PostPosted: Thu Dec 01, 2011 11:43 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8514
Quote:
As remarked, every catheterization and ballooning impacts the veins in a deleterious way

Either the jugulars matter or they don't.....
I had a 99% blockage in one jugular and a 80% blockage in the other jugular. Either having blocked jugulars has a health consequence and I was right to get that cleared, or it doesn't have a health consequence and it wouldn't matter if the veins were damaged and I acquired a 100% occlusion in a jugular, since I already had that.

It is unsupported to say that every catheterization and ballooning impacts veins in a deleterious way. If this were accurate, there would be no angioplasty done at all. My veins were impacted for the better, not the worse.
Quote:
However I did start to think that i may be rushing in to things too quickly and ought to weigh up ther pros and cons. There is so much information out there on all this stuff and my head is spinnng to be honest.

There is no rush, especially if your health is stable. Learn as much as you can, try and separate facts from opinions, get tested for CCSVI without making a commitment to act on that testing.....


Top
 Profile  
 
 Post subject: MarkW's opinion
PostPosted: Thu Dec 01, 2011 3:37 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 19, 2006 3:00 pm
Posts: 1054
Location: Oxfordshire, England
To contact me please e-mail mark@walkerm.com with your background, e-mail and phone number.
I am happy to talk to pwMS trying to decide net steps.
MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html


Top
 Profile  
 
PostPosted: Thu Dec 01, 2011 5:13 pm 
Offline
Family Member
User avatar

Joined: Mon Mar 14, 2005 4:00 pm
Posts: 81
I think you should wait a while tufty1. Dr Zamboni's currently trying to develop a stent specifically to keep jugular valves open and this would really help with the prevention of restenosis.

I was done in Edinburgh, Scotland, about a year ago and did quite well for a couple of weeks. It definitely wasn't placebo because I didn't notice any difference until the next morning when I found it much easier to swing my legs out of bed. Unfortunately, it didn't last long and, sure enough, when I received my follow up Doppler was told my valves had closed almost shut again.

Anyway, I suspect that in the next few years there are going to be more options open to both of us and, who knows, the price might even come down!

Good luck with whatever you decide to do.

BB


Top
 Profile  
 
PostPosted: Mon Dec 05, 2011 2:47 am 
Offline
Getting to Know You...

Joined: Tue Nov 29, 2011 10:43 am
Posts: 11
thanks to you all for your input.

You're right in that emotion needs to be put aside when considering this treatment; which is difficult as we all want to feel better right? The real trouble is that I agree with everyone! The theory all makes sense to me, but any treatment like this surely involves risks; they just need to be weighed up and thats the hardest thing.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 19 posts ]  Go to page Previous  1, 2

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Egypt in December.

[ Go to pageGo to page: 1, 2 ]

L

20

2152

Fri Nov 19, 2010 10:35 am

L View the latest post

There are no new unread posts for this topic. Thrombosis in Egypt

[ Go to pageGo to page: 1, 2, 3 ]

L

43

4780

Fri Mar 04, 2011 6:39 am

L View the latest post

There are no new unread posts for this topic. Egypt-wheelchair-Won't treat?

[ Go to pageGo to page: 1, 2 ]

thornyrose76

16

2672

Mon Nov 15, 2010 10:07 am

nagsy View the latest post

There are no new unread posts for this topic. Atlas/TMJ treatment with Dr M Amir to negate CCSVI treatment

CindyCB

5

2672

Thu Oct 04, 2012 6:49 am

TheCatsWhiskers View the latest post

There are no new unread posts for this topic. CCSVI treatment and migraine..any difference after treatment

Brightspot

2

1581

Sun Jan 17, 2010 11:35 am

magoo View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings