CCSVI screening in NJ

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI screening in NJ

Postby CuriousRobot » Tue Dec 06, 2011 11:20 am

Just a heads up: I went to the CCSVI symposium in NYC in mid-July and noticed there was a table for "Deak NJ Vein Clinic" which does CCSVI screening in New Jersey (close to me) so I went ahead and scheduled an appointment. It was a nice place; clean, and the staff were friendly. I had an ultrasound done to check for patency of my jugular veins. It was nice to know the status of my veins, considering I was "liberated" overseas, and would be hard to get follow-up without traveling abroad. Dr. Deak, who heads the clinic, seemed like a very kind person, knowledgeable and very interested in CCSVI research. Speaking with him, he told me he attended a Zamboni conference years ago but was very skeptical about the venous system's involvement with MS but now feels otherwise.

The day I had the appointment, I had an ultrasound of my neck veins sitting up and laying down and the technician didn't press very hard on my neck (Untrained technicians do this because they learn to search for the carotid this way, but it can distort the image of the vein, if they do that.) so I knew that they knew what they were doing.

Here is their link: http://www.veinnj.com/

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Re: CCSVI screening in NJ

Postby Cece » Tue Dec 06, 2011 2:17 pm

Were your veins patent, CuriousRobot?

In addition to Deak NJ vein clinic, there may also be a VAC or an AAC in NJ. If you're East Coast, you've got a lot of options. :)
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Re: CCSVI screening in NJ

Postby CuriousRobot » Tue Dec 06, 2011 9:06 pm

Yeah.
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Re: CCSVI screening in NJ

Postby CuriousRobot » Tue Mar 13, 2012 11:33 am

Seems like more activity re: CCSVI procedures on the forum; I'll bump this.
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Re: CCSVI screening in NJ

Postby CuriousRobot » Fri Feb 28, 2014 5:05 pm

I am bumping this thread. Last time I visited Dr Deak was about a week ago. The same super friendly US technician was there. 3 1/2 years ago, had angioplasty on left IJV in Katowice. IJVs are patent thus far with some minimal pooling in right IJV which doesn't necessitate intervention. Have had surge of symptoms following upper respiratory tract infection, nonetheless. For follow up on Liberation treatment, strongly, strongly recommend Dr Deak. His staff are really nice and Dr Deak is the friendliest doctor I know. Never encountered such warm bedside manner as with Dr Deak, and I have interacted with a lot doctors ( as patient, unfortunately ) but also in my line of work. His office is also very clean. Would also like to mention that Dr Deak attended International Union of Phlebology in Boston ( IUP ) and was present during lectures by Zamboni, Simka, et al. Being from NJ, very lucky to have such a great local resource like Dr Deak. My typing is a little off since I am on mobile device. Take care.
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Re: CCSVI screening in NJ

Postby Cece » Sat Mar 01, 2014 7:08 pm

Hope the surge of symptoms settle down.
I love hearing long-term follow-up of still patent veins.
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Re: CCSVI screening in NJ

Postby CuriousRobot » Mon Mar 03, 2014 6:54 pm

Thank you. I hope so too.
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Re: CCSVI screening in NJ

Postby milesap » Wed Mar 12, 2014 8:29 am

I had the Deak ultrasound and the Zamboni protocal at American Access Care. The Deak vein center took 20 minutes the Zamboni protocol took 55 minutes guess which one was better? Also the Deak Vein center did not catch the reflux American Access Care did.
I'd stay away from Deak he is only in it for the money.
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Re: CCSVI screening in NJ

Postby CuriousRobot » Thu Mar 13, 2014 3:32 pm

milesap wrote:I had the Deak ultrasound and the Zamboni protocal at American Access Care. The Deak vein center took 20 minutes the Zamboni protocol took 55 minutes guess which one was better? Also the Deak Vein center did not catch the reflux American Access Care did.
I'd stay away from Deak he is only in it for the money.


I think it is disingenuous to claim Dr. Deak is "only in it for the money." You aren't anymore privy to his mental attitude towards CCSVI and MS patients, not mention healthcare and medicine as a whole, than the next person. Realistically, only comments and observations on your own personal experiences are valid, in this respect. Finally, I cannot speak on the soundness of one or the other's methodology, since I am not a healthcare provider, but am pleased to hear that whatever issues you were having were detected and/or resolved.
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