AtlasBalance (jaw misalignment) Treatment - EJC

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Fri Sep 21, 2012 7:47 am

Jen are you seeing Amir?
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby jencor69 » Fri Sep 21, 2012 9:00 am

EJC wrote:Jen are you seeing Amir?

Yes EJC, sorry forgot to say in my post
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Fri Sep 21, 2012 9:07 am

Well start your own thread and document how and where the improvements come. All the ups and downs.

The more the merrier!
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Thekla » Sat Sep 22, 2012 12:18 am

Jen, so encouraging to hear about motor improvements so early in treatment. Are you doing physical therapy as well to rebuild muscle or improve gait?
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby jencor69 » Sun Sep 23, 2012 1:13 pm

Thekla wrote:Jen, so encouraging to hear about motor improvements so early in treatment. Are you doing physical therapy as well to rebuild muscle or improve gait?

I have recently completed a rehabilitative physiotherapy course specifically to help improve my walking following treatment for CCSVI and Nutcracker syndrome. I started TMJ treatment 6 weeks into the course. My scores (BERG scale) improved during this time from 25/56 to 48/56 in 3 months. I still do the exercises at home having now been discharged. :-D
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Sun Sep 23, 2012 1:36 pm

Emma has started a similar course, although being at the beginning right now and combating 15 years of muscle wastage we're still at the stretching stage before any genuine exercise is considered.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Amir » Thu Sep 27, 2012 10:19 am

Facebook appears to have closed my account!
We all may have to migrate to an alternate system where neither Facebook nor its cronies can ban free speech.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Thu Sep 27, 2012 10:48 am

Not just me then.

If you were a conspiracy theorist you might even think Big Pharma were chasing you!
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Thekla » Thu Sep 27, 2012 11:32 am

I did just read of someone trying to email a friend in the UK and the email was blocked due to objectionable content. She selectively deleted various rants and once references to ccsvi and against big pharma were gone, it went through, no problem. Disconcerting.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Thu Oct 11, 2012 8:20 am

October Update.

Periodically, Emma completes an on line questionnaire produced by Amir to track her progress. This is quite lengthy and is filled in initially at or during the week of your first consultation.

Each time you subsequently complete it, you are not aware of your previous answers, so it is blind.

From these questionnaires, Amir compiles graphs which produces a simple pictorial representation of any improvements or worsening of symptoms. This is Emma's - The timeline is detailed on the graph itself.

Image

The increase in sinus issues is courtesy of a sinusitis problem Emma developed earlier this year and is still battling with.

Emma has been waiting two years to get Neurophysiotherapy to combat her muscle wastage issues, this started a little over a month ago and will solve the muscle weakness issue highlighted in this graph. A year ago Emma would not have been able to exercise, now she can. We expect her walking and gait to improve over the next 12 months.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby Thekla » Thu Oct 11, 2012 9:12 am

The improvements are quite far-reaching and impressive. I've found that once anything really improves, the rest seems more manageable, maybe because I expect it also to improve and hope makes life better in general. Is Emma using a vibroplate to rebuild muscle? I haven't been able to get therapy approved, but a fitness studio just opened in our building and I got the cheap membership (without sauna!). I am hoping to build some leg/core muscles there.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby EJC » Fri Oct 12, 2012 12:58 am

Emma isn't using a vibroplate, she's rehabilitating first. Simple massages of tendons and muscles that have been unused for years are proving very good indeed.

We're off this morning to join a fitness centre that has classes especially for MS sufferers designed to keep/build muscle tone.
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby blossom » Tue Nov 13, 2012 9:40 pm

small study-but note it mentions better blood flow to the brain,

Cranio. 2011 Jan;29(1):57-70.
Neuromuscular orthotics in the treatment of craniomandibular dysfunction and the effects on patients with multiple sclerosis: a pilot study.
Heit T.
SourceMultidisciplinary Association for The Study of Cranio-Cervical Pain, Edmonton. scotiasquare@interbaun.com

Abstract
The purpose of this pilot study was to identify, measure and document an effect on the subjective multiple sclerosis symptoms and compare it to any objective data changes in the neuromuscular system of the head and neck, following the correction of the jaw position using a neuromuscular orthotic. The hope is to provide clinical evidence of improvement in the disease long-term without relying on the subjective evidence of remissions and exacerbations reported by the patient. The evidence found in the current pilot study measured improvement of head position, jaw position, jaw function, and airway in the neuromuscular bite position, which correlated with the improvement of subjective symptoms of craniomandibular dysfunction and multiple sclerosis. Studies show that the bite affects blood flow in the brain, which may explain the improvement of the patients in the current study.

PMID:21370770[PubMed - indexed for MEDLINE] Publication Types, MeSH TermsPublication TypesComparative StudyMeSH TermsAdultAxis/radiographyCephalometryCerebrovascular Circulation/physiologyCervical Atlas/radiographyCone-Beam Computed TomographyCraniomandibular Disorders/physiopathologyCraniomandibular Disorders/therapy*Dental Occlusion, CentricFemaleHead/anatomy & histologyHumansJaw Relation RecordMaleMandible/pathologyMandible/physiopathologyMandibular Condyle/radiographyMiddle AgedMultiple Sclerosis, Relapsing-Remitting/physiopathologyMultiple Sclerosis, Relapsing-Remitting/therapy*Neck/anatomy & histologyOdontoid Process/radiographyOrthotic Devices/classification*Pharynx/pathologyPharynx/physiopathologyPilot ProjectsPosture/physiologyTemporomandibular Joint/radiographyTomography, X-Ray ComputedVertical DimensionYoung Adult
LinkOut - more resources
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby PointsNorth » Wed Nov 14, 2012 12:06 am

Blossom, could I ask if you could post a link to this paper?

Thx, PN
Albany 2010. Brooklyn 2011
Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-
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Re: AtlasBalance (jaw misalignment) Treatment - EJC

Postby CureOrBust » Wed Nov 14, 2012 3:12 am

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