Johnnymac wrote:The neuro today confirmed what we've thought for a while now, Court has Primary Progressive MS, not RR. 5 years of no new lesions, gradual worsening of symptoms and no periods of remission.
This may be why she didn't see any long term benefit from CCSVI treatment, as it seems the RR group are the ones who really see lasting positive results from opening up the veins. Wanted to let those who have followed our journey know the news as it does shine new light on her not seeing the great benefits from ballooning that we had hoped for.
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