This Is MS Multiple Sclerosis Community: Knowledge & Support

Please help! I know there is (or was) an imaging place near Chicago that offered the Haacke MRV and the results were sent to him to read for an extra fee. But I can't recall who it is.

Can someone remind me who it is that offers this? I have lost my sticky note with their name and number. This is what I get for cleaning off my desk.

Many thanks.

Hi St. Louis-

Dr. Hector Ferral at Rush University Hospital is offering the Haacke protocol MRV --Dr. Arslan from Florida (who has tested and treated over 300 patients) is moving up to Rush next month.

His contact information is:
Dr. Hector Ferral, Affiliated Radiologists
Rush University Medical Center
1725 West Harrison Street, Suite 450
Chicago, IL 60612
312-563-4238 (office)
312-942-4414 (cell)

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

This is not the one I knew about as all I can recall is it is a stand-alone place in the suburbs but a great option nonetheless. Thank you!!

i was dr ferral's first patient to ask him about ccsvi. this was mid 2010. he deccided to go in after telling me "i'm not changing my protocol." he found nothing . six months later he called me back saying he found something on the cd disk and he could help me. i went back. he popped a left valve. i felt great for a week then worse. i had a thrombus forming. he tried asparin, coumadin, lovenox. it remained for six months. then i went to see dr makris after dr ferral told me to contact a neurologist re: a dmd!

i am much worse and waiting for the paperwork to go through. coumadin is NOT my friend which i've been on for a year now. see i asked before my first procedure "are the any vegetables i should avoid?"

answer: no

i hope this makes sense , too dizzy

I am so sorry to hear that itsjustme. I hope Dr. Makris is able to offer you help.

AWhen you mention foods you should not eat while on Coumadin...are you referring to leafy greens or something like that?

yep.
that and my daily vitamin with vit. k
and my daily calcimum chew with vit. k
or my daily green grapes containing vit k
or anything with vit k.

Dr. Makris has not focused on CCSVI, but has maintained his busy vein practice, which means he has less experience with CCSVI. And your case is complex. If the occluded vein ends up being untreatable, it would be best if all other CCSVI stenoses are found, and the best means to find all stenoses is through IVUS, according to the IVUS abstracts we've seen. The closest IR to Chicago who uses IVUS is Dr. Cumming here in MN.

I think Dr. Ferral was using Plavix and aspirin, with the plavix started prior to treatment? Antiplatelets instead of anticoagulants? Wonder if he's switched to Pradaxa now. Thrombus might be due to oversized balloons or insufficient anticoagulation or maybe random bad luck. Treating a jugular clot after it forms with anticoagulants seems to be fairly standard, but that does nothing to remove the clot, it's just intended to keep the clot from worsening and the body to clear the clot on its own. Especially when the clot is caught early, a repeat procedure to manually remove the clot might be preferable. These veins are important. I hate occlusions. Wishing you the absolute best with your upcoming treatment. First the occlusion must be cleared, then the vein must be kept open, which is a challenge in itself.

thanks cece.

i just had my three week-post procedure-follow up appointment.
i am slightly better.
after 13 months i will now come off coumadin.

thanks for reading.