This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 26, 2013 12:30 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 7 posts ] 
  Print view Previous topic | Next topic 
Author Message
Cece
PostPosted: Fri Jan 20, 2012 7:42 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8514
https://www.facebook.com/notes/alessand ... 2573219216
Quote:
4th ARAB RADIOLOGY CONGRESS 2011

LEBANESE SOCIETY OF RADIOLOGY

28th - 30th April 2011

CCSVI IN MS. DIAGNOSIS AND MANAGEMENT

Tommaso Lupattelli (Italy)

Introduction: Chronic cerebrospinal venous insufficiency (CCSVI) is a recently discovered syndrome mainly due to stenoses of internai jugular ( IJV) and/ or azygos (AZ) veins. The aim of the present study is to retrospectively evaluate the feasibility and safety of endovascular treatment for CCSVI in a cohort of patients with multiple sclerosis (MS).

Study was of 206 MS patients.
Quote:
One patient underwent selective venography alone due to no evidence of significant stenosis in the IJVs and AZ. In four additional patients the decision to carry out the interventional procedure was solely taken after selective venography which disclosed at least one significant stenosis in the IJV or AZ territory despite a negative Colour Doppler Ultrasound for CCSVI.

Only one patient failed to have any CCSVI stenoses. Four had a negative ultrasound but had stenoses upon venogrpahy.
Quote:
Major complications included 1 (0,5%) severe bleeding in the groin requiring open surgery, 1 (0,5%) surgical opening of common femoral vein to remove balloon fragments and 1 (0.5%) left IJV thrombosis 28 days after discharge. Minor complications included, 3 (1,5%) procedure-related technical issues, 3 (1,5%) transient atrial fibrillation requiring a further 12 hour hospital stay, 10 (5%) slight bleeding or haematomas in the groin ( 3 requiring further hospital care the day after intervention and 3 prolonged hospital stay) two right neck haematoma (1%) both occurring the day following the procedure and one (0,5%) haemo- tympanum on the 25th day after discharge.
Quote:
Discussion & Conclusion: Endovascular treatment for CCSVI appeared feasible and safe. However, a proper learning curve can dramatically lower the rate of complications. In our experience, all major complications occurred in the first 50 cases performed.

Better to be patient #51 than to be #1....
Top
 Profile  
 
MrSuccess
PostPosted: Sat Jan 21, 2012 12:06 am 
Offline
Family Elder
User avatar

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 823
... the second mouse always get's the cheese ...... :wink:


MrSuccess
Top
 Profile  
 
MarkW
PostPosted: Sat Jan 21, 2012 6:01 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 19, 2006 3:00 pm
Posts: 1054
Location: Oxfordshire, England
My first procedure in Athens, Greece (June 2010) was before the first fifty the Vascular Surgeon had operated on. No regrets at all. I was under treated according to DrS who performed my second de-stenosis. If you are going to a less experienced CCSVI practioner then I suggest you find someone who is cautious in their approach. For me, using IVUS is essential to find all issues and correctly size the balloon.

MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Top
 Profile  
 
LR1234
PostPosted: Sat Jan 21, 2012 7:38 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California
I agree, I think my damage was done by an IR who had not treated many and was too aggressive:(
Top
 Profile  
 
Cece
PostPosted: Sat Jan 21, 2012 8:40 am 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8514
Quote:
If you are going to a less experienced CCSVI practioner then I suggest you find someone who is cautious in their approach.

I agree with this! But in order to find one who is cautious, you have to know enough about the procedure to identify the difference between cautious and aggressive.
Top
 Profile  
 
MarkW
 Post subject: Cautious approach
PostPosted: Sat Jan 21, 2012 9:50 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 19, 2006 3:00 pm
Posts: 1054
Location: Oxfordshire, England
MarkW wrote:
For me, using IVUS is essential to find all issues and correctly size the balloon.

I hope people will use this forum to find a practitioner who uses a cautious approach. I am here to help pwMS to get the right therapy - Vitamin D3 and gold standard tools are my recommendations.
Cece you supply a vast amount of info for pwMS. I hope they take notice rather than reading adverts from clinics.
MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Top
 Profile  
 
AndrewKFletcher
PostPosted: Sat Jan 21, 2012 11:12 am 
Offline
Family Elder
User avatar

Joined: Wed Jan 14, 2009 4:00 pm
Posts: 759
Location: Paignton, Devon, UK
Mark, the link to on your post is broken

_________________
Find us on Facebook.com/InclinedBedTherapy
IBT website: http://inclinedbedtherapy.com
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 7 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. ccsvi could be for this reason

fee001

9

1154

Mon Jul 11, 2011 1:20 am

fee001 View the latest post

There are no new unread posts for this topic. Cervical Reason for CCSVI

[ Go to pageGo to page: 1, 2 ]

rssugg

26

3888

Thu Jun 03, 2010 11:18 am

jr5646 View the latest post

There are no new unread posts for this topic. CCSVI A simple reason

[ Go to pageGo to page: 1, 2, 3 ]

fee001

38

2105

Tue Aug 23, 2011 11:44 pm

HappyPoet View the latest post

There are no new unread posts for this topic. a reason for the discrepancies in % of MSers with CCSVI?

[ Go to pageGo to page: 1, 2 ]

MS_mama

17

3153

Sun Feb 21, 2010 2:12 pm

Sotiris View the latest post

There are no new unread posts for this topic. Reason why MS gets better during pregancy?

North52

5

977

Sun Nov 07, 2010 12:59 pm

debp View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings
This site does not offer, or claim to offer, medical, legal, or professional advice. All treatment decisions should always be made with the full knowledge of your physicians.


All logos and trademarks in this site are property of their respective owners. Content is © 2002-2013 by thisisMS.com.