cheerleader wrote: This is a lay persons' webpage. The real action is now at the research level, and as Bob mentioned, that takes time for results. Those of us at the beginning really thought that treatment would be much less complicated...but as the malformations are explored and IRs work on fine tuning protocols, we are learning how much more complex cerebrospinal insufficiency is. Jeff continues to do really well. He's been very fortunate.
I love Dr. Fox's research, especially coming from a neurologist, and a respected one.
As for real action, there is a letter-writing campaign afoot! I need to copy over the information into a new thread. CCSVI is practically a campaign issue in Canada, and here in the US it is largely unknown, and Karen Golden Oronte aims to change that.
http://www.facebook.com/notes/ccsvi-in- ... 4393432211