This Is MS Multiple Sclerosis Community: Knowledge & Support

This is a lay persons' webpage. The real action is now at the research level, and as Bob mentioned, that takes time for results. Those of us at the beginning really thought that treatment would be much less complicated...but as the malformations are explored and IRs work on fine tuning protocols, we are learning how much more complex cerebrospinal insufficiency is. Jeff continues to do really well. He's been very fortunate.
cheer

I have been treated multiple times. I still browse the site, but am not very active. I am PPMS and while I have more energy, more alert, less heat intolerance; my right side has continued to slowly progress negatively. I am not even sure that I am progessing, but I am feeling better but not getting stronger, if that makes sense. I think the more energy with lack of immediate improvement combine to add to the frustration. My left IJV has only been open 3 months, so I am still waiting.

I know I said I would be happy if the progression just stopped, but I want it all back.

I too have been treated twice, and going again in a month for my third treatment this time with Dr. Arata.

I improved extremely well the first time but it did not last long, second time I received a stent and didn't have much improvement but this time I believe will be better as he works on the valves which I believe are the key.
I too have PPMS but since my operations I have not progressed too much, and some improvements are wonderful and have stayed with me such as no more cog fog, cold purple feet are always beautifully warm, less headaches, spasms, and slurred speech.
this all could be from LDN and herbal remedies but I tend to believe I have improved the quality of my Life, however small these improvements seem to be, they are everything to me. If, this time I only stop the ringing in my ear's and the extreme pain I will be very grateful but like the other writer I want it all because I've had this glorious taste of everything disappearing.
Best to all,

I can't bring myself to base my expectations on my hopes.