Last monday I was tested for CCSVI.
This is my report which I posted in the german CCSVI-forum (http://das-ccsvi.net/
My english is not good + I'm not familiar with the medical language so I had a hard time translating.
Plz forgive me for misspelling and not-readable sentences and feel free to ask for clarification.
table of content
IV Evaluation of results
Sommer 2011 I was diagnosed with relapsing remitting MS and during my research I came across CCSVI.
I wanted to get tested but was unsure where to go so I asked around in the german CCSVI-forum
and decided to go to CCSVI-Center Offenbach/Frankfurt (http://www.ccsvi-center.de
) in Germany.
My appointment was on February 2nd 2012, 09:30 AM to ca. one PM.
I checked in on time, following a friendly welcome I had to fill some questionaires first, after that I was sent to
MRV (which took quite a long time, it felt like an hour) then UT which went very quickly (took like 5 min.)
and at the end discussion of the results with Dr. Zapf.
Patient: male, 35 years old, diagnosed with relapsing-remitting MS in sommer 2011.
device: Siemens Magnetom
(modified) Haacke Protocoll
- before intravenous contrast agent administration:
Susceptibility weighted imaging and T2 axial from head and neck.
- before, during and after intravenous contrast agent administration:
determination of circulation time of contrast agent, contrast agent enhanced MR-angiography of the
head and neck vessels.
- after intravenous contrast agent administration:
High resolution 3D T1 fatsat axial and sagittal in the region of the azygos-system,
multiple measurments of flow in the region of Vv. jugulares, cranial sinus and V. azygos.
High resolution 3D T1 fatsat sagittal of head and neck.
Multiplanar and angiographical MIP-reconstructions and parametric evaluation of flow measurments.
Duration of testing: ca. 1 hour
device: GE Logic P5
protocoll/technique: Doppler sonography with 10Mhz linear-array probe, B-mode, PW-mode, color-coded
Duration: ca. 5 minutes.
III testing results
III.I MRV results
Several typical supratentorial MS-plaques, no indication of ongoing inflammation.
No increased iron deposition, individual dull signal-iterations of the cervical myelon.
Normal venous drainage of the neurocranium via internal vains of the brain, via sinus sagittalis superior and via
sinus rectus, normal calibre and normal flow, no stenosis of any relevance.
Only rudimentary existence of the left sinus transversus and sinus sigmoidus without any pathological relevance.
opposite side much more pronounced.
Consequently the V. jugularis interna right has a large calibre whereas the left side is of rather small calibre.
Normal flow situation via VJI on both sides, normal calibre, stenosis of any relevance cannot be detected.
Moderate collateralisations of the externa.
These are some images from the DVD, which I find to be informative:
III.II UT results
Doppler sonographic examination shows normal flow in both VJI, slight distal turbulences in upright position.
No typical flow-disturbances, no morphologicaly discernible stenosis.
V. subclavia and V. anonyma same strength on both sides, no variation of normal, no stenosis.
Same is true for the superior and iferior cava-system.
V. azygos normal, normal calibre, no stenosis, no flow disturbance of any pthological significance.
IV evaluation of results
- Variant with destinctly reduced calibre of the left sinus traversus and sinus sigmoidus, also reduced calibre
of V. jugularis interna left.
- Normal venous drainage via V. jugularis interna on both sides, no indication of CCSVI.
I dont know what to make of the finding, that there is almost no sinus transversus/sigmoidus on the left side,
what are the consequences for the left side of my brain (if any)?
Does anyone else have this kind of variation?
January this year I had a heard time with numbness in my right hand and foot-drop in the right leg, Im glad
they found no signs of ongoing inflammation.
I would like to send the DVD/findings to Dr. Sclafani and ask him for a 2nd opinion but I think right now
he is busy with his preparations for the ISNVD.
Maybe I should ask him after the ISNVD?
who wants to live forever?! - http://www.youtube.com/watch?v=_Jtpf8N5IDE&ob=av3n