BMK, 20 month update, CCSVI Treatment X 2, Liked it

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

BMK, 20 month update, CCSVI Treatment X 2, Liked it

Postby bmk1234 » Thu Feb 16, 2012 6:31 pm

Hello everyone, Long time, No talkie.
Here is a quick update on my MS after being treated for CCSVI on 2 occasions.
On 6/10/2010 I was treated for CCSVI in Albany, NY at the Albany Medical Center by Dr. Gary Siskin. Dr. Siskin found 2 areas of restriction in my left jugular, 1 in my right jugular, and 1 in my azygous vein. All 4 were treated successfully with angioplasty.

A couple months after being treated for CCSVI, I suspected restenosis, mostly because my severe headaches had returned. On 12/16/2010 I was treated by Dr. Greg Snyder at the University of Minnesota Medical Center. Dr. Snyder found 1 area of restriction in my left jugular, 2 in my right jugular and 1 in my azygous vein. All 4 were treated successfully with angioplasty.

On my MRI dated 10/30/2009, prior to my first CCSVI treatment, I had approximately 10 lesions on my brain. On the MRI taken on July 2 2011, after being treated for CCSVI on two occasions, it showed 5 maybe 6 lesions on my brain. Not exactly sure how to interpret the reduction in lesions. (If any of you have information on medical reasons for the reduction, I’d appreciate the information).

The question now is, how am I doing from a progression and symptom point of view? I have not had any progression of symptoms, my severe headaches are much better and not as frequent. I would say my leg and hand numbness is not as bad. I used to get muscle flutters/twitches daily, they are gone now. From a cognitive standpoint I still have issues with memory, word finding, etc. Overall, I’m doing well.

Take Care
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Re: BMK, 20 month update, CCSVI Treatment X 2, Liked it

Postby MrSuccess » Thu Feb 16, 2012 8:12 pm

bmk - one of the great mystery's of MS .... disappearing lesions .

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Re: BMK, 20 month update, CCSVI Treatment X 2, Liked it

Postby Cece » Fri Feb 17, 2012 2:17 pm

I would think a reduction in lesions is a sign of healing. MS lesions can come and go, unless they're 'black hole' lesions.

Have you had any ultrasounds done to see if your veins have stayed open?

It's good to hear from you again. It seems like you had improvement, but not dramatic improvement? Am I remembering correctly that you had a relative who was treated at the same time as you? I hope she is doing well.
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Re: BMK, 20 month update, CCSVI Treatment X 2, Liked it

Postby bmk1234 » Sun Feb 19, 2012 6:28 pm

Hi Cece, yes, my aunt was treated at the same time, she is doing OK, no better, no worse. I have not had any ultra sounds done, since I've been feeling ok, my thought is to not do anything until I feel worse. Not sure that is the right thinking, but that is the plan.
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