Hello everyone, Long time, No talkie.
Here is a quick update on my MS after being treated for CCSVI on 2 occasions.
On 6/10/2010 I was treated for CCSVI in Albany, NY at the Albany Medical Center by Dr. Gary Siskin. Dr. Siskin found 2 areas of restriction in my left jugular, 1 in my right jugular, and 1 in my azygous vein. All 4 were treated successfully with angioplasty.
A couple months after being treated for CCSVI, I suspected restenosis, mostly because my severe headaches had returned. On 12/16/2010 I was treated by Dr. Greg Snyder at the University of Minnesota Medical Center. Dr. Snyder found 1 area of restriction in my left jugular, 2 in my right jugular and 1 in my azygous vein. All 4 were treated successfully with angioplasty.
On my MRI dated 10/30/2009, prior to my first CCSVI treatment, I had approximately 10 lesions on my brain. On the MRI taken on July 2 2011, after being treated for CCSVI on two occasions, it showed 5 maybe 6 lesions on my brain. Not exactly sure how to interpret the reduction in lesions. (If any of you have information on medical reasons for the reduction, I’d appreciate the information).
The question now is, how am I doing from a progression and symptom point of view? I have not had any progression of symptoms, my severe headaches are much better and not as frequent. I would say my leg and hand numbness is not as bad. I used to get muscle flutters/twitches daily, they are gone now. From a cognitive standpoint I still have issues with memory, word finding, etc. Overall, I’m doing well.