magoo wrote:I mean no disrespect, but it seems like you are insinuating that Dr. McGuckin is being deceitful and that is where the problem lies. There could be many reasons for his results. The fact is we just don't know how CCSVI is related to other diseases and how often normals may have this condition. So, I don't find his results so suspicious. Anyone with symptoms of CCSVI/MS can go to him for treatment. He treats because of a certain set of symptoms and those people have been given the diagnosis of MS. Yes, maybe it's not MS after all, but maybe there is no MS and CCSVI is the real culprit?
Personally, as a patient of MCGuckin who had a positive experience, I feel the need to give him the benefit of the doubt. He is one of the good guys and has helped push the research forward for all of us. I'm going to see him again in two weeks for my third procedure and feel very good about it.
I'm not insinuating that Dr. McGuckin is being deceitful of all, nor am I making that insinuation about any of the treating interventional radiologists. I don't think I've implied this in anything that I've written, and if I have, my apologies. I've corresponded with and/or talked to a lot of these IRs directly and hold most of them in the utmost regard. I'm simply saying that the nearly universal finding of venous abnormalities amongst the tens of thousands of patients treated throws up some red flags.
If we assume that 20,000 patients have been treated, and accept the minimum percentage of MS misdiagnosis usually quoted by those who have studied such things (5%), then a minimum of 1000 patients who don't have MS have undergone venoplasty, and the vast majority of those have been found to have venous abnormalities worthy of intervention. We know that many, but not all, of the differential diagnoses for MS have known etiologies that have nothing at all to do with the venous system. Therefore, we should have reports of at least several hundred patients who have undergone venoplasty and been found to have normal veins. Unless, of course, venous abnormalities are common in the general population, which could very well turn out to be the case.
Basically, I'm just pointing out a disconnect between the outcomes that should be expected given the current state of our knowledge, and what is actually being reported.
My suspicion is that some of the venous abnormalities being picked up during CCSVI venoplasty may be common even in healthy subjects, as has been hinted at by the cadaver studies done by the Cleveland Clinic, as well as the ongoing studies being done at BNAC. If this is the case, patients undergoing CCSVI venoplasty may be being overtreated, and this may be reflected in the relatively high number of folks reporting minimal or no benefit post procedure.
BTW, happy that you are amongst those who have experienced great benefit, and fervently hope that you continue to do so.