This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello Dr S,
My thought on risks of stents is that the risks are different above and below the heart (effect of gravity). Explaining this to patients may help.
Kind regards,
MarkW

Thanks Cinna for relaying your experience.
Cece, it was 80% blocked, so it was a big problem.
How weird am I to be hoping for a stent?!

Hello Dr S,
My thought on risks of stents is that the risks are different above and below the heart (effect of gravity). Explaining this to patients may help.
Kind regards,
MarkW

Personally I would be more comfortable recommending stents to MS patients once we have proven the efficacy of stenting as treatment of CCSVI. The debate over the risk of any treatment is only relevant when weighed against the benefits. Since we are in the infancy of treating CCSVI syndrome and outcomes do seem to vary widely, it's premature to conclude that the risk/benefit ratio is favorable for all patients. At this point, I personally think it's too soon to recommend stents to CCSVI/MS patients. My comments are aimed only toward the CCSVI/MS discussion, as I'm not familiar with nutcrack syndrome.

I chose to not do stents, and my doctor at the time said they were not doing stents for exactly those reasons I outlined above. Personally I know of some who have well over 5 stents in their jugulars with little to show in terms of improvement. Small sample size, yes, but I think it's fair to mention the flip side of this debate since many people do make decisions about treatment based on what they read here.

Dr S,
Did your stenting criteria have the support of others at ISNVD?

Hi Dr S,

I have had balloonm angioplasty with slight improvements which went awa after a few weeks post-angio.

in the last angio in May 11' i asked the dr to check my renal veins and after he said they were too tiny to dilate.
Do you think even tiny renal veins could be successfully dilated with stents?

by the way, i had 50-60% IJVs stenosis and 90% Azygous stenosis. Only the IJVs dilated three times, Azygous twice. But as each of the 3 procedures was performed by different IR i dont know if they dilated the same area in the Azygous.

I was told the same thing and was lucky enough after the second time of having ccsvi went for the third time and was lucky enough to get the jsa. I am one of the first. I was begging for the stents and the doctors steered me clear of this I am so lucky to have a team of doctors come up with this.

i am not sure that i would stent for 80 percent stenosis. I might not do anything.I would measure pressure and treat depending upon pressure. In one reported series, there was a 9 mm difference. I might do it if there was at least a 3 mm difference.

thank you deirdrec
you are the first patient i have had the opportunity to communicate with about this procedure. Can you tell me how long ago you were treated? When was the last time you were imaged to see the state of that vein. I assume that you have had ultrasound monitoring of the surgical angioplasty. Is that correct?

What was the impact of this treatment on your health, on your MS symptoms?

I was treated almost 7 weeks ago. Yes i had an ultrasound just last week and all is good. doctor who came in while the scanning occurred were unsure of what treament I had recieved. They had to look it up on U-tube and I then forwarded a copy of the medical report.

Impact on symptoms were : incontinence gone, sensation back to all extremies vision and fog brain cleared up.Speech clear the list goes on and on.

looking forward to hearing more about this.

Rhonda, would it help to have a work-up done for possible signs of renal vein stenosis? Urinalysis for red blood cells or protein and a blood pressure check?
(information on what's involved with a renal vein workup taken from this aging post of drsclafani's chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic10680-5190.html#p166812 )