This Is MS Multiple Sclerosis Community: Knowledge & Support

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Excellent!
What a great job that ISNVD has done of making information available to the patients. From the abstracts to these videos to the Patients' Day webinar. And this is only their second year.

nice

how wonderful to now be able to put faces and voices to familiar names.....

I found Dr.Fox's interview extremely interesting .

Any word on where / when ISNVD # 3 will take place ?

I fully expect to see solid CCSVI study results presented at ISNVD 3.

If you asked me if any of this was possible 3 years ago ............



MrSuccess

ISNVD #3 will be in Poland!

dr fox's interview was great. That's the stuff we should be reading about in the newspaper

I agree, Bill--
Finding truncular venous malformations, which change blood flow, in the autopsied veins of pwMS is a huge breakthrough in understanding the disease. Sadly, the mainstream media is not interested, since their sponsors will not benefit from this announcement. Bravo to Claudiu Diaconu, Case Western student, for initiating this important study, and thanks to Dr. Fox for speaking about it at the ISNVD conference.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thanks to cheerleader, we knew about Dr. Fox's work, as soon as it was published. That's one good thing about this place. There almost seems to be a competition to get the best info. I think it's great. The ISNVD interview I found the most earth-shaking was Dr. Alexander's, where he said they have markers for MS that are related to vascular remodeling, involving the state of the endothelium in the veins. To me it was an unexpected deepening of the theoretical side, strengthening the CCSVI theory.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

thanks, 1eye, I'll watch Dr. Alexander's next.

Thanks, one eye. Not so sure it was about competition for best info....I've always been on the quest to help Jeff feel better. And to make sure my son doesn't get this wretched disease. Urging researchers to follow up on this line of inquiry is why I'm still posting...we need these brilliant minds working together, and we need the interested parties to help do the urging and funding of these events.

Dr. J. Steven Alexander has been looking at the vascular connection in MS since since the early 2000s. I got to sit with him and discuss the endothelium at the first Bologna conference in September 2009. He was particularly interested in my noticing Jeff's high serum markers for inflammation and coagulation during his first flare, and linking that to endothelial dysfunction, as that was/is his line of investigation-- Endothelial microparticles in the blood of pwMS. He was reading the TIMS boards back in '08, and knew me as Cheerleader. Not sure if he's still checking in....but if so---"THANKS, Dr. Alexander!!"
http://www.isnvd.org/files/bios/Alexander.pdf



cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

There is so much info these days, it's difficult to keep up with, let alone compete to stay ahead! Often the info I post is poached from Cheer's CCSVI in MS page. There are also other facebook pages, twitter, news articles that get emailed automatically whenever a search term like CCSVI turns up. But I don't think we've discussed the latest info about ... here yet.

[...] is standing for the gap in my memory. Correct use of ellipses?

It wasn't this, although this is interesting too: http://thechart.blogs.cnn.com/2012/02/2 ... pt=hp_bn10

It was this one: http://radiology.rsna.org/content/262/3/947.abstract
Multiple Sclerosis: Cerebral Circulation Time
If anyone is interested in discussing, we can start a thread!

..... ......... .. ....

MrSuccess