Keeper wrote:I had the procedure in Sept 2011 at the Essential Health Clinic, Edinburgh.
Immediately afterwards I remember commenting to the nurse how easily I had put my clothes back on because my balance was much better, previously I would have had to have sat down or lean against the wall to thread my legs into trousers etc. It was difficult to assess my walking due to the heavy strapping the nurse had applied around my groin but from what I could tell things were steady.
After returning home and removing the strapping the next day I felt I needed to get out for some air and a gentle walk in the woods. Initially the signs were good and I felt like I had a pair of working legs under me as I walked. Unfortunately within a few hundred yards this feeling stared to deminish so I headed home.
The next few days became a roller-coaster of fluctuating emotions and symptoms, I really didn't know what to expect from one day to the next which was unsettling because prior to the procedure my condition was fairly predictable and I knew the things that would aggravate it.
Since September things have been deteriorating at a faster rate with my right leg and arm noticably weaker and my right foot dropping all the time.
EJC wrote:Emma will next be in Putney on 8th March.
If you're on Facebook, there is a small (private) group for Amirs Patients that chat about progress. We've met a few of them now.
Emma's account is here - send me a friend link and I'll get you on board if you wish.
Bear with me though I'm not great with Facebook!
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