Linda Rousay is doing really well. She was recently evaluated by a group of neurologists at a local NMSS meeting. She discusses it on her blog:
When she was finished, they all agreed that I “appeared” to have no clinical signs of MS. Finally Dr. Rivers said, ” I was this woman’s neurologist many years ago. She had RRMS. I read her chart and wanted to be here to see for myself. She went on to explain the MS symptoms I had as her patient. When there was an objection, she said,” I have never seen this level of improvement in an MS patient. After reading the doctor notes of successive physicians, and her severe level of disability two years ago, I concede that this dimension into the causal factors of MS demands more consideration.”http://ccsvimammananny.blogspot.com/
Denise Manley is very involved in the Facebook community, as an advocate. She fundraises for Dr. Siskin's trial, and is doing really well.
Both women claimed they were SPMS when treated, and are now up and active and doing well.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS