I didn't get the disk with images to take home - they said they will mail it to me.
But, on day 5, I am doing well. Quite black and blue in the groin, but no pain there. The neck tenderness went away after a few days.
The procedure itself was fairly simple. On the first day, they did an MRI and ultrasound which showed some restrictions. Dr. Jerry said I had 1 of the 5 criteria for CCSVI on my left side and 2 of 5 on the right. He said I shouldn't expect a lot of improvement since my symptoms were so mild, but that the cog fog and leg heaviness should improve. However, he cautioned this was all experimental and he couldn't give any odds regarding improvement. He has done some 300 of these procedures and said he never uses stints unless the patient demands them or if the ballooning caused a tear which required a stint to repair. He also prescribes Pradaxa rather than aspirin and Plavix. He didn't encourage me to proceed, but said he has seen improvements in people with MS (but, of course, he was treating CCSVI and not MS) and he agreed with my comment that being treated early is better than putting things off.
The next day I went in bright an early. The staff was wonderful and took good care of me, inserting an IV and, yikes, shaving down there near my private parts! They weren't embarrassed about it so neither was I. In the OR, the PA took over and Dr. Jerry came in and they got started. They gave a mild sedative, but I was awake and conscious. I felt a small prick where the tubes would be placed, and the only other thing I felt was the balloon inflations. I thought I would feel the tube being run up inside me, but I didn't. He wanted me to keep him informed about any pain I was feeling during inflations. Most of the time the pain was mild, but a few times it got pretty uncomfortable, but it only lasted a few seconds. If I even said the pain was starting to become bad, he stopped.
I don't remember how long the procedure lasted. No more than an hour. I could see the display screens at times and it was fascinating to see it happening. I was too out of it to think to ask him to explain what he was doing at the time, though. When it was all over, they had me lay flat on my back for two hours, after which they let me sit up and they offered me a choice of things to eat and drink. After about 3 hours, they declared me fit. They helped me dress and wheeled me out.
I went back the next day for a quick ultrasound which was positive. They want me back in 3 months for a follow up.
Dr. Jerry and staff were really nice and he said all the right things regarding what I have been learning here. He told me that he assisted with the CCSVI conference in Orlando and was there, but did not present any papers.
At this point, as my original symptoms were mild, I cannot say if I have any improvements. My cog fog hasn't re-asserted itself yet, which could be a positive sign, and there may be some improvement in some other symptoms, such as possibly less leg heaviness. I have been off work for the last 2 weeks (vacation as well as time for the procedure), and I have three days of solumedrol (my third round) scheduled to start tomorrow, so maybe after tomorrow when I go back to work I may feel a return of symptoms.
The most interesting thing was the doc said when he injected dye in my right jv, he saw the flow go around the back of my head and out into the left jv. He said after ballooning the proper flow was restored. I hope I can see that when I get the disk of images!
Regarding the 6 balloons, it may have been a combination of balloons and inflations.