post procedure chat with Dr. McGuckin on youtube

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

post procedure chat with Dr. McGuckin on youtube

Postby Cece » Sun Mar 18, 2012 4:02 pm

These are fantastic. For some reason we only get these post-procedure chats done by patients with Dr. McGuckin. We don't get similar videos of patients with the other doctors. Here's the latest:
http://www.youtube.com/watch?v=XV9kJwGX ... ture=share

Doesn't Dr. McGuckin come across as a likeable guy? I like him and I've never had the chance to meet him.

The patient describes the brighter colors that's she's seeing post-procedure. Red is red. Blue is blue. Dr. McGuckin suggests that patients have mentioned both improved colors and clarity.

The patient received a stent in the 'candy-cane' portion of the azygous. Here he meant the 'stick' portion of the azygous, not the arch, when he said candy-cane, unless I got that wrong?

What's interesting is that he said this was the first time he has seen a patient with two jugulars on the same side. The two jugulars went into the skull base. In the lower neck, they joined together before the valve, and the valve was bad, so drainage was impaired in both. Does fixing the valve fix the situation there, or are the two jugulars going to compress one on the other and impair drainage that way? I wonder what he meant by two jugulars, if they shared a vein wall or if they were completely separate up until the merger before the valve. And with both going into the skull base, just what was going on up there? Wouldn't the dural sinus only lead into one of them? How do we know that this was a duplicate jugular, and not some other vein that was big enough to be a jugular? Dr. McGuckin, we need ivus images, dural sinus investigation, and perhaps a case study publication! And we won't be getting that.

I also again like the nifty human body illustration that Dr. McGuckin uses to explain what was done! It's simple and effective.

All best wishes to ThePennyGirl as she heals!

Forgot to add: Dr. McGuckin prescribed Plavix and aspirin, which are both antiplatelets, rather than a true anticoagulant like Pradaxa or Arixtra or Coumadin. With the azygous stent, he expected to keep the patient on Plavix for life.
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Re: post procedure chat with Dr. McGuckin on youtube

Postby milesap » Mon Mar 19, 2012 9:27 am

I have a real problem with this video the lady is not off the table and indicates better fatigue yet she is still on the table, too soon, could it be adrenalin. Look we know CCSVI works and people and respond with better fatigue but lets wait here. Another thing she states she is not going to fall anymore, again wait a while before making that claim.
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Re: post procedure chat with Dr. McGuckin on youtube

Postby Rosegirl » Mon Mar 19, 2012 12:16 pm

It really does work like that for some of us.
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Re: post procedure chat with Dr. McGuckin on youtube

Postby Cece » Mon Mar 19, 2012 9:33 pm

For me the brighter colors happened while still on the table and in the OR. Some cognitive clearing happened then too, as did hearing improvement, which was as unexpected as the colors. It took me much longer to be able to tell if my fatigue had improved or not. But then again some people say their fatigue went away entirely, and mine hasn't, although it is reduced.

I have heard of people who are able to do things physically right after the procedure that they couldn't do when they went in. And then there are people who come out with no improvements. I wish the doctors knew who was likely to get what outcome, so expectations could be easier to set, going in.

Could adrenalin be a factor? Or euphoria or the immediate redistribution of venous flow and CSF flow causing a 'shock' to the brain. I don't know.
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Re: post procedure chat with Dr. McGuckin on youtube

Postby MrSuccess » Mon Mar 19, 2012 10:34 pm

it's never talked about .... but .... are other medical problems solved using CCSVI treatment ?


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Re: post procedure chat with Dr. McGuckin on youtube

Postby Cece » Tue Mar 20, 2012 7:29 am

Which medical conditions, MrSuccess? It is quite interesting to consider the effects of CCSVI in so-called healthy controls. In Dr .Fox's autopsy study, one of the hc's had an intraluminal abnormality in the jugulars or azygous. I could see ccsvi symptoms being misdiagnosed as depression, certainly. So a future study might be to look at the incidence of CCSVI in depressed vs nondepressed patients, and if there is a higher incidence in the depressed patients, then treat them! The goal though is to get CCSVI treated as a syndrome in and of itself, and not merely a condition that worsens other medical conditions. I was posting a week or two ago about liver disease patients, who have increased amounts of toxins in their blood due to failing liver, and those toxins cross the blood-brain barrier and cause encephalopathy. Any liver disease patient with CCSVI might benefit from treatment of CCSVI, if that treatment results in a tighter blood-brain barrier and less deposition of toxins in the brain. And there are the obvious possibilities that doctors are already looking at, to see if patients with migraines or parkinsons or ALS benefit from the treatment of their ALS. I would love to see CCSVI be a slam-dunk of a treatment not just for the MS population but for others as well. It is too early to know, and it is also to early to dismiss the possibilities!
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Re: post procedure chat with Dr. McGuckin on youtube

Postby MrSuccess » Tue Mar 20, 2012 3:56 pm

Cece - I would imagine many current neurological problems . You listed a few.
Was it not Dr.Zamboni's CCSVI partner -the Neurologist Dr.Silvi - who first made mention of this ? I liked his '' nobody gets left behind'' comment.

It is sad and disturbing to read that some so-called medical professionals continue to dispute the fact that disturbed blood flow OUT of the brain .... is not important.

Note : I say FLOW .... not PRESSURE. This is key.

We all know what happens when bloodflow INTO the brain is reduced or stopped. :cry:

And now we know the effects of reduced or stopped bloodflow OUT of the brain.

And the good things that change, when corrected . :-D



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Re: post procedure chat with Dr. McGuckin on youtube

Postby Cece » Tue Mar 20, 2012 4:52 pm

Pressure may be significant in CCSVI as well. There is sometimes talk of renaming CCSVI, and I think it was proposed that it is a hypertension rather than an insufficiency, although I don't think that fully explains the situation either. Hypertension plus slowed drainage!
I like the 'nobody gets left behind' idea too. It might not be the answer for everyone but it can be explored. The link to MS is the most apparent, because of the high statistical association.
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