"MP’s advocacy does no good for ‘hysterical’ constituent"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

"MP’s advocacy does no good for ‘hysterical’ constituent"

Postby Cece » Sun Mar 25, 2012 6:23 am

A strong letter.
http://www.kelownacapnews.com/opinion/l ... 90616.html
The “hysteria” is coming from chronically ill multiple sclerosis sufferers and their care givers who are being ignored, who cannot get answers to legitimate questions put to our so-called leaders, and who are being discriminated against by a health care system that is far from “universal.”

It is because respected vascular surgeons are ignored while the minister of health and the CIHR listen to advice from the neurological community who are clinging to an unproven theory and who have not cured one patient in over 60 years.

As for “proven procedures” being in place, it seems that whatever these procedures might be, they can and are being over-ridden. (Jan 17, 2012 globalnews.ca Report on the work being done at the Munk Cardiac Centre, Toronto.)

A procedure called renal denervation is being performed using studies done outside of Canada. The procedure is a minimally invasive surgery, which is not approved in Canada. It is being allowed under Health Canada’s Special Access Program.

Unproven, not approved, minimally invasive—why is CCSVI not being given this special treatment?
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