MarkW wrote:Hello Cheer and Cece,
I do not want to change the purpose of TiMS.
I would encourage both of you to learn from 'big pharma' on how to spread medicine usage.
Unsurprisingly I use my pharma industry as an example. Yes it is hated by many posters on TiMS but it makes billions of dollars every day of the year.
Mark--Big difference between why I'm here and what pharma does--I'm not selling anything. I don't want
people to get treated for CCSVI unless they have done the research, can stay close to home, work with a physician who has an IRB and can follow them. I don't want people treated for CCSVI unless they understand this may not be a one time procedure, and they are willing to make the lifestyle changes in diet, exercise, and lifestyle habits, necessary to maintain a healthy vasculature. Because bad treatment is worse than no treatment...as evidenced by all the people who have restenosed, clotted and have no other treatment options. They come on here and they are hurting. And that is upsetting.
I'm here because I believe venous insufficiency is real, and we need more research.
I'm here because Jeff's doing well three years later---and the success of his CCSVI treatment is due to the fact he
1. stayed local 2. changed his diet and lifestyle 3. had retreatment 4. kept active 5. worked with a vascular specialist.
The only way to move CCSVI forward is NOT more treatments that are not followed or documented in published research. The only way to move CCSVI forward is research and encourage collaboration between practices and keep patients safe. That's what we do at CCSVI Alliance. Check out our new video interview with Dr. Robert Fox and Jeff's doctor, Dr. Michael Dake. www.ccsvi.org