ah, that explains the lack of support from the MS Society...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

ah, that explains the lack of support from the MS Society...

Postby Cece » Thu Apr 05, 2012 1:15 pm

http://www.meridianbooster.com/ArticleD ... ?e=3526379
What doesn’t stay in Lloydminster goes directly to MS research, said Green, adding the past few years have brought about new fields thanks to the CCSVI-related ‘liberation’ therapy. However, the new treatment procedure isn’t without its share of controversy and Green said while some are reporting positive results, it isn’t a definitive cure, which is what the MS Society is targeting.

“We want people to know that while the liberation therapy certainly seems to provide some promising relief for people, many of those people are still coming to our organization in need of programs and services to continue enhancing their quality of life.”

There you got it: the MS Society is after a definitive cure. They can ignore and/or undermine CCSVI due to its not being a cure.

I never need a sarcastic emoticon but let me look for one. :roll: :? 8O :cry:

Neurological damage is neurological damage, and it will still be there after blood flow is improved. Neurons that are damaged may improve and heal; neurons that are dead are dead. Right now it is not known whether CCSVI treatment is a cure or not, and for which patients, and for CCSVI symptoms considered separately from MS symptoms. If CCSVI is treated early enough, prior to neurological damage, will it prevent MS from developing? It is a question worthy of investigation and funding.

Also worthy of funding are the local services that Ms. Green mentions, that help keep MS patients mobile. Wheelchairs, scooters, handivans and taxis. Those who are participating in MS walks are doing a good thing. An alternative would be to donate to CCSVI Alliance, and to participate in the 'Walk and Roll' type CCSVI walks. Also a good thing.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Advertisement

Re: ah, that explains the lack of support from the MS Societ

Postby 1eye » Thu Apr 05, 2012 1:40 pm

They can ignore and/or undermine CCSVI due to its not being a cure.
By that logic they could ignore/undermine a lot of DMDs!
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2996
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada

Re: ah, that explains the lack of support from the MS Societ

Postby David1949 » Thu Apr 05, 2012 3:31 pm

By that logic ALL of the DMDs would get thrown under the bus.
David1949
Family Elder
 
Posts: 648
Joined: Mon Aug 23, 2010 2:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service