Post Liberation treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Post Liberation treatment

Postby Dorothy » Fri Apr 06, 2012 2:25 pm

I had the Liberation Treatment on March 5th 2012. Just over a week later my feet and ankles are completely numb.The numbness is slowly going up my legs.Has anyone else experienced this ?
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Re: Post Liberation treatment

Postby Cece » Fri Apr 06, 2012 3:36 pm

Not me but I've heard of a very few reports of it. Have you asked the doctor who did you your treatment? Did the numbness come on abruptly during the procedure, or not until a week later? Is numbness a symptom you have had before?

Possibilities could include vagus nerve being compressed during ballooning, unrelated MS relapse, new post-procedure redistribution of outflow from the brain leading to improved outflow in some areas but worse outflow in another area causing numbness, or ... any other possibilities?

One more possibility is that a clot has formed. This can be checked by any vein doctor, it does not have to be someone experienced in CCSVI. This is where I would start if I had a new symptom or loss of improvements in the early days after the procedure. Are you on any medications post-procedure?Did you have any improvements, or have improvements and lose them?
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Re: Post Liberation treatment

Postby FLJhawk » Fri Apr 06, 2012 4:47 pm

I started having numbness 2 weeks after CCSVI (performed March 13) in the feet, ankles, hands and wrists. It varies a bit in intensity from not being very noticable to being pretty noticable, but not imparing my mobility. I had this numbness several months ago when I originally started having MS symptoms, so as Cece indicates, it might be a pseudo-exacerbation or it could be CCSVI complications. I am getting in touch with my CCSVI doc to seek their opinion, though after 3 weeks I am thinking there is some slight improvement from the worst of it. Are you having any neck pains?
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