This Is MS Multiple Sclerosis Community: Knowledge & Support

I was ashamed as a Polish citizen, that Euromedic asked 2 times as much for a medical operation from foreigners than from Poles. It was only a method of Euromedics to gain financial profit from the patients. It was in no way very elegant from them. The Poles felt like patients of second category and the foreigners felt like milking cows.

Now there is a Hospital in Warsaw with world class standard http://www.medicover.com/plpl/szpital/wycieczka/ . I ask everybody to take a 3D virtual tour of the Medicover Hospital (you can see what a real entrance means, what a two-bedroom means, and so forth). A 4 hours operation with the diagnostic help of the IVUS apparatus costs the same for Polish and for foreign citizens. And they ask even less than the previously mentioned “hospitals” are asking for a 1-hour angioplastic operation from a foreigner. And please take into consideration that the one-time used catheter with ultrasound vision and 5 paramedics have also their cost. In Medicover Hospital the cost of this operation is for everybody 22.000 Polish Zloty, which is currently about 5.300 Euro http://www.medicover.com/plen/hospital/ ... ackage.htm .

We had no other choice and we were shamelessly exploited. I can guarantee now, that I can be proud of myself, as I sent the scientific material already in 2010 to the direction of Medicover Hospital and the Scientific Committee of the Hospital took the decision – after a discussion with Dr. Schelling – to perform CCSVI operations. The medical director at that time – doz. Kielar – asked the Ethical Medical Commission for approval of CCSVI operations, but this was not needed at all, since I had already this written approval from the Ministry of Health.
Regards
Rici

Dr. Simka at Euromedic has contributed to the medical literature on CCSVI, at a time when there is not nearly enough medical literature on CCSVI: http://scholar.google.com/scholar?q=sim ... as_sdtp=on

I would hope that the doctors at Medicover will do so as well.

It is difficult to weigh our options between one clinic and another, when cost and experience and prior patient outcomes must all be considered. Euromedic has been treating CCSVI since 2009.

Thank you Rici for the boots on the ground report, its been interesting watching Dr Simka evolve through the process, speaking more to the facilities angle here than the science. In 2009 there were precious few options for patients, and much fewer if any to be treated by experienced hands, Simka was one of those. I'm wondering how involved Drs are with these kinds of big money plays, and not condemning nor defending, but profit driven ventures sometimes have their own volition apart from the Drs involved, and of course it also stands to reason that whatever the market will bear also factors in, I would be interested to find out how many Canadians are visiting there now versus a cross border journey to the states. In 09-10 many were going to Europe but obviously they have better to comparable options closer to home.
Either way we patients need to do our homework, now more than ever.
M.

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Let's be a bit more clear, as Cece said----Dr. Simka is president-elect of the ISNVD, he has published a few papers on CCSVI, he is working hard to understand the mechanism of this disease. I know the American doctors appreciate the fact that he is publishing in peer-reviewed journals and advancing the science. They view clinics that treat without publishing as a problem. I do not agree with portraying this situation as black or white, Rici.

Dr. Dake's first patients paper is finally published, now three years later. The doctors are learning more each year, and treatment has changed since the beginning. But it is only through collaboration at events like ISNVD or peer-reviewed journals that this is ever going to change MS. And bad-mouthing the pioneer doctors just isn't helping.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I wrote about Euromedic, which is owned by mother of Dr Ludyga, mean Dr Ludyga is the decision maker, also about much higher ever-increasing prices for foreigners. Poles wouldn't hold such prices, so treatments are done much cheaper for polish citizen. I wrote about the prices of treatments, not about Dr. Simka. However, if you write about Dr. Simka, he advised to Dr. Ludygi that people as they came down from the trees do not need the valves in the veins of the neck. As a result of this erroneous thinking, despite warnings from Dr Schelling, I got damaged valve, expanding already comprehensive vein .This led to terrible consequences, including the need for open surgery http://www.ccsvi-ms.pl/foto/op7.jpg , http://www.ccsvi-ms.pl/foto/op2.jpg http://www.ccsvi-ms.pl/foto/op5.jpg . Before my second surgery, for my my recall of Dr Schelling warning, Dr Simka said: "... Dr Schelling exaggregate..". The day after the second surgery, Dr Simka doing the USG hid from me the fact of after surgery reflux http://www.ccsvi-ms.pl/video4.avi . It's easy for You to call "the great and wonderful Dr. Simka".I do not deny his achievements in the theory of venous MS CCSVI, but I was the pioneer of its operations and lay down on the operating table as the first patient in the IDC in Poland... and it's me who suffered after spectacular condition improvement,untill accidentaly opened right side valve got closed. Damaging the valve caused an avalanche of healthy consequences. One must be able to admit the mistake and have self-criticism as a scientist, to not make these mistakes again for other patients. We must learn from mistakes and not repeat them. 3-rd Jan. 2010, in Katowice after examination Dr Ludyga diagnosed reflux..., then I called to Dr Simka, to let him know the fact and remind Dr Schelling warning. DR Simka replied: "...and who's Dr Schelling? He's a plain GP...". I felt sorry. As far as I know, since 2011, Dr Simka's view of the valves in the jugular vein did not change ....
A "home doctor": http://www.ms-info.net/evo/msmanu/984.htm . http://www.ms-info.net/ms_040504.pdf , http://ccsvi-ms.pl/orlando_presentation.pdf , http://www.isnvd.org/index.php?site=interviews#content
Regards
Rici

Hello Rici,
I sympathise with your position but my aim is to help pwMS to choose safe therapy for CCSVI, rather than report clinics. You mention a clinic that uses catheter venograms and intravascular ultrasound (IVUS) for the CCSVI procedure. Would you please check all this infomation by questioning with the clinic/doctor and asking for references. Then post your findings under the thread - GOLD STANDARD TOOLS:
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic18063.html

I am amazed by your report as it is a breach of European law to charge different prices for the same procedure to people from the European Union. It is allowed to charge for extra services (such as local help and translation). Have you reported this to the Polish authorities ?
Kind regards,
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html