My EDSS was 6.5-7.0. It is probably now back to that. But I have had improvements. I can't play guitar, but I'm making progress on piano. Not in wheelchair much anymore but walker is still too slow for prime time. Hardly any falls these days. Can do about 4 hours easy work if I take pain-killers. Good luck and better health.
I have, sad to say, had more falls since my post on this thread on Monday, than I have had since I came home from Albany in 2010.
I am at the end of my walking improvements and ready to get back in my wheelchair. I think there is plenty of evidence that a) it can improve many things, including walking, for years, maybe indefinitely, and b) it is often temporary. I am not
saying anything about placebo effect. These are real
improvements, and they can last indefinitely, but often (and I don't know how often) are lost again. At least one doctor says it's not a matter of if, but when. Is it 'loss of improvements' or is it a relapse? If it's a relapse, then the diagnosis by at least two 'MS' neurologists, of 'SPMS', makes no sense. I have heard of 'RP' (relapsing progressive) but it all sounds like pin-head angels to me. That goes for any treatment, too.
So, I still say, discuss it with your doctor, and go for it if you want to. There's a slim chance you get worse,. You might not benefit, it might not last, or you might and it might. The best outcome, for me, was too good to pass up a chance on, and after one heart attack I was not afraid of a catheter. So I got some radiation, ok. That's another good reason to use IVUS. Also, I went to a Parliamentary subcommittee meeting, which a guy who had gone to Poland was also at. He spoke there, I think. He had been in a long-term nursing place, but now had his own apartment. He was now walking. I saw him do that, uphill, too, across a busy street. Of course I'd never seen him before, so he could have been lying, but I doubt it somehow.
It's still early in the life of this treatment. A very difficult decision for some, natural to others.