a thing to do before and after CCSVI treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

a thing to do before and after CCSVI treatment

Postby 1eye » Fri Apr 20, 2012 5:03 pm

Click on this link.

Note how well she has done. I'm ready to read the paper(s).
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Re: a thing to do before and after CCSVI treatment

Postby David1949 » Fri Apr 20, 2012 9:31 pm

Sounds a lot like the diet proposed by Ashton Embry.
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Re: a thing to do before and after CCSVI treatment

Postby adamt » Sat Apr 21, 2012 3:37 am

Hmm, these improvements seem unrealistic,

being as disabled as she was, to then walking miles and cycling by simply eating a raw food diet seems very unattainable
There must be another reason for these improvements? maybe an underlying condition with regards to her digestive system

think of the amount of neurological damage and de-myelinatiion that would have occurred, for all of this to reverse by raw food alone??

for the last 4 years i have been taking the following vitamins on a daily basis:
Calcium.
Magnesium
Fish oil
Zinc
Copper
Vitamin B50, C, D3, E
Selenium

I have not seen any improvement in my MS taking all these vitamins, but continue as i am told its important

i do have a western diet but it is healthy clean food with the odd treat, i do avoid diary.

has anyone else seen improvements by following this raw food diet?
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Re: a thing to do before and after CCSVI treatment

Postby 1eye » Sat Apr 21, 2012 8:06 am

There is always the possibility of a remission I guess, but hey she seems to be pretty well. If that happened to me I'd get up and speak about it too. No, I am taking the point to be that they were numerous, plentiful, and complete, but also, remember what she *doesn't* eat. I think that's equally important and expensive and hard to do, as what you do eat.Another one of the things hunter-gatherers had that we don't, is variety. Nature has infinite varieties of very complex types of food that we will be eons finding another more artificial, mass-producible and refinable way. Why try? Bill Bryson wrote about a nineteenth-century naturalist who had as his life's goal to eat at least one of every edible animal. If he didn't get to every one, he at least got close.

I have a theory that some of the magic in evolution comes from one or more cells learning organic biochemical tricks at the cellular level. By having a variety of biochemical materials to work with in our diet we make that learning more possible. The eagle's eye is a miracle in one way, but don't undersell the cell.

If it's going to work for more than one person, and I live to see that, you'll find me lining up for it. Meantime I think I'll try to learn more about it, and work towards it. I was on that type of diet once, and it was good for me, but I stopped. Maybe it was too hard, I was too lazy, didn't know how good. I don't know. Waiting to hear abut the trial.
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Re: a thing to do before and after CCSVI treatment

Postby David1949 » Sat Apr 21, 2012 10:51 am

1eye wrote:There is always the possibility of a remission I guess, but hey she seems to be pretty well. If that happened to me I'd get up and speak about it too. No, I am taking the point to be that they were numerous, plentiful, and complete, but also, remember what she *doesn't* eat. I think that's equally important and expensive and hard to do, as what you do eat.Another one of the things hunter-gatherers had that we don't, is variety. Nature has infinite varieties of very complex types of food that we will be eons finding another more artificial, mass-producible and refinable way. Why try? Bill Bryson wrote about a nineteenth-century naturalist who had as his life's goal to eat at least one of every edible animal. If he didn't get to every one, he at least got close.

I have a theory that some of the magic in evolution comes from one or more cells learning organic biochemical tricks at the cellular level. By having a variety of biochemical materials to work with in our diet we make that learning more possible. The eagle's eye is a miracle in one way, but don't undersell the cell.

If it's going to work for more than one person, and I live to see that, you'll find me lining up for it. Meantime I think I'll try to learn more about it, and work towards it. I was on that type of diet once, and it was good for me, but I stopped. Maybe it was too hard, I was too lazy, didn't know how good. I don't know. Waiting to hear abut the trial.


I was on the Swank diet for quite a few years, but I fell off the wagon. Bacon and scrambled eggs was my undoing. I should try it again. The Wahls diet goes beyond that. Any of these diets are hard to do, especially if you like to eat out.

Dr. Wahls made a presentation here http://www.direct-ms.org/Presentations/Wahls/index.html
at about 38 minutes into it she mentions that certain foods cause "sticky" blood. Is that related to CCSVI?
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Re: a thing to do before and after CCSVI treatment

Postby cheerleader » Sat Apr 21, 2012 11:14 am

Dr. Wahls was secondary progressive, it wasn't remission. Thanks to Dr. Embry, she is looking at diet as related to the endothelium, hypercoagulation, and blood vessel health--that was the "sticky blood" comment you noted, David. Hypercoagulation is a biproduct of endothelial dysfunction.

This is program I put together for Jeff. He was on it for a couple years before I shared it on TIMS and then thru CCSVI Alliance, where Dr. Embry learned about it. Hope it can help others. We're basically all saying the same thing (Embry, Swank, Wahls, Jelinek) with a few minor variations---forks over knives, plants over animal products, more leafy greens, fruits, vitamin D, B12, essential minerals, reduce stress and keep moving. Lack of movement decreases blood volume. The vessels need shear stress to function. The endothelium needs antioxidants, nitric oxide. Jeff's inflammation numbers (SED rate, C-reactive protein) went way down after starting this program.

http://ccsvi.org/index.php/helping-myse ... ial-health

Dr. John Cooke (author of The Cardiovascular Cure) and Dr. Terry Wahls will both be speaking on this topic in San Diego at the Hubbard Conference on venous health--hope to see some TIMS people there!

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dx dual jugular vein stenosis (CCSVI) 4/09
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Re: a thing to do before and after CCSVI treatment

Postby dc10 » Mon Apr 23, 2012 6:13 am

I have started this wahls diet today,
i will update with my results

im very optimistic :)
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Re: a thing to do before and after CCSVI treatment

Postby PointsNorth » Mon Apr 23, 2012 11:19 am

With regards to hypercoagubility, is it possible that we could treat with something like low-dose heparin or something? Perhaps the symptom improvements we experience immediately after angio e.g.the "HD effect" could be attributed to the heparin we receive? And maybe the Pradaxa keeps us on track for a few additional weeks? I would be interested to know how many fall off the wagon within a month of venoplasty. Most of my improvements were lost after exactly 1-week both times.

Maybe we should get tested for hypercoagubility and try to reduce our blood viscosity if we need to using blood thinners of some kind?

FYI-I tried Paleo diet for some time but found it difficult to stay on. I need a live-in Paleo chef!

PN
Albany 2010. Brooklyn 2011
Hurry up and wait.
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Re: a thing to do before and after CCSVI treatment

Postby jimmylegs » Mon Apr 23, 2012 11:29 am

@adamt hi can i ask you for some clarification re the following?

"for the last 4 years i have been taking the following vitamins on a daily basis:
Calcium.
Magnesium
Fish oil
Zinc
Copper
Vitamin B50, C, D3, E
Selenium
I have not seen any improvement in my MS taking all these vitamins, but continue as i am told its important
i do have a western diet but it is healthy clean food with the odd treat, i do avoid diary."

may i inquire re your persistent symptoms, plus daily forms, doses and timing of the supplements on your list? also whether you have ever had bloodwork to assess the efficacy (or lack thereof) of your regimen?
and finally, if you could post or pm a 3 day diet diary, two week days and one weekend day, so that i know what you mean by healthy clean western diet? then perhaps we we could see if there are any obvious challenges to absorption of important nutrients. (..i know you said you avoid 'diary' ;) but just this once?)
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: a thing to do before and after CCSVI treatment

Postby FLJhawk » Mon Apr 23, 2012 3:32 pm

I remain a bit skeptical of all of this. The hunter-gatherer concept is kind of romantic and appealing in this high tech work, but cave men didn't live long and healthy lives necessarily! Much of the increase in disease today is due to longer lives and better record keeping. There were some pretty nasty infections that people died of back then and the romantic notion today that a natural diet will cure most any disease or infection simply isn't true. That said, I quickly admit that some diseases are related to our modern, Western diet (diabetes, for example).

So, diet clearly plays a role in our health and we need to be doing all that we can to have a healthy diet as, at the least, it gives us some sense of control over our disease. But, it is just one factor and we really can't say for sure how important diet is regarding any possible recovery from MS. We can attribute different things as to the cause of our MS and to any progressions, and we can attribute different things to when we get better, and we may not be anywhere close to be correct! We simply cannot know, and only long term studies can shed any light. The fact that even those who stick to a diet long term and have minimal progression doesn't really prove anything, for those who got worse may have given up on the diet, and the ones left to tout the diet are those who didn't get worse due to genetics or other factors, and not their diet! We simply don’t know.

But, I am taking a ton of vitamins and other supplements as I want to try everything I feel I reasonably can to stop this thing, and I often recommend a good diet to those newly dx’d with MS.

Wish I knew the answers. I am so happy Dr. Wahls has improved and it is difficult to argue that it was not due to a change in diet. I hope it was as it gives hope to the rest of us, even though it may not help everyone. I have no reason to doubt her intentions or sincerity and I hope her improvement holds. I have her book, which was a bit of an inspiration to get on a decent diet. Not sure I can do everything she recommends, but it is a start and, who knows, it may help.
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Re: a thing to do before and after CCSVI treatment

Postby 1eye » Fri Apr 27, 2012 8:17 pm

Waiting for studies...
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
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