Stenosis

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Stenosis

Postby ragesht » Mon Apr 23, 2012 8:21 am

what is the best way to check if I have stenosis ?

thanks


RT :?:
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Advertisement

Re: Stenosis

Postby dania » Mon Apr 23, 2012 8:32 am

Best way is with a venogram. But the person interpreting the scan is also very important. A blood flow expert would be best. Vascular or cardiothorassic doctor that knows what they are looking for.
User avatar
dania
Family Elder
 
Posts: 1088
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Re: Stenosis

Postby ragesht » Mon Apr 23, 2012 8:44 am

thanks :smile:
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Re: Stenosis

Postby Cece » Mon Apr 23, 2012 8:52 am

Get a doppler ultrasound for CCSVI done by someone trained and experienced. Depending on where you live, we can tell you the closest option.
Cece
Family Elder
 
Posts: 8990
Joined: Mon Jan 04, 2010 4:00 pm

Re: Stenosis

Postby ragesht » Mon Apr 23, 2012 9:27 am

hi, many thanks for your reply, I am in London, UK
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Re: Stenosis

Postby Cece » Mon Apr 23, 2012 9:33 am

Dr. Reid at EHC is up in Glasglow.
MarkW, if you see this, is there anyone closer?

Dania mentioned a venogram and that is the procedure itself, where a catheter venogram is done using xrays and then the catheter is exchanged for a balloon catheter when a stenosis is found.

Before I got that far, I'd had two ultrasounds and an MRV, so I knew my veins were a mess. :)
Cece
Family Elder
 
Posts: 8990
Joined: Mon Jan 04, 2010 4:00 pm

Re: Stenosis

Postby drsclafani » Mon Apr 23, 2012 7:19 pm

ragesht wrote:what is the best way to check if I have stenosis ?

thanks


RT :?:


The best way to check to see if you have a stenosis is with IVUS and venography. If you have MS, nothing else is satisfactory.
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
User avatar
drsclafani
Family Elder
 
Posts: 3132
Joined: Fri Mar 12, 2010 4:00 pm
Location: Brooklyn, New York

Re: Stenosis

Postby ragesht » Tue Apr 24, 2012 12:59 am

can anyone help with a name and contact, who performs IVUS and venography in London UK

thank you,

RT
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Belguim or Scotland

Postby MarkW » Tue Apr 24, 2012 1:21 am

Hello Ragesht,
See the gold standard thread for info.
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
MarkW
Family Elder
 
Posts: 1142
Joined: Thu Oct 19, 2006 3:00 pm
Location: Oxfordshire, England

Re: Stenosis

Postby Cece » Tue Apr 24, 2012 7:47 am

Dr. Sclafani is right about IVUS and venography. But remember that IVUS+venography is invasive, so this is done as part of the procedure itself. If you are looking for noninvasive imaging to help decide if you want to go ahead with the procedure, I would still recommend getting a doppler ultrasound done.
Cece
Family Elder
 
Posts: 8990
Joined: Mon Jan 04, 2010 4:00 pm

Re: Stenosis

Postby drsclafani » Tue Apr 24, 2012 7:46 pm

Cece wrote:Dr. Sclafani is right about IVUS and venography. But remember that IVUS+venography is invasive, so this is done as part of the procedure itself. If you are looking for noninvasive imaging to help decide if you want to go ahead with the procedure, I would still recommend getting a doppler ultrasound done.

cece, the question asked what was the best way to see stenoses
Salvatore JA Sclafani MD
Patient contact: ccsviliberation@gmail.com
User avatar
drsclafani
Family Elder
 
Posts: 3132
Joined: Fri Mar 12, 2010 4:00 pm
Location: Brooklyn, New York

Re: Stenosis

Postby ragesht » Wed Apr 25, 2012 12:19 am

thank you people you are very kind, because of you guys my thoughts are a lot clearer, i need to undertake on either an invasive or non invasive to identify stenosis and than possibly undertake the liberation treatment. my cardio vascular person does not think I have stenosis, but that is his viewpoint, he has offered thorough conclusion if i want, as its on private treatment, my GP is completely supportive. The treatment centre closest is EHC, I have spoken to them, they have a waiting list but its do able.

thanks once again all you good guys,

RT
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Re: Stenosis

Postby dania » Wed Apr 25, 2012 7:30 am

A CT scan (64 slice) is also another way of detecting stenosis, less invasive, not as conclusive as a venogram but far more accurate than an ultrasound. This is what my cardiothorassic doctor did to me (as well as an ultrasound and a venogram) before he did a vein bypass on me and did another CT scan again 4 days after the bypass operation to see how the blood flow was. He found 1 side was 100% open and the other was 95% open (due to a small hematoma).
User avatar
dania
Family Elder
 
Posts: 1088
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Re: Stenosis

Postby ragesht » Wed Apr 25, 2012 7:38 am

noted, thank you for that dania
ragesht
Getting to Know You...
 
Posts: 10
Joined: Sun Mar 11, 2012 7:12 am

Re: Stenosis

Postby dania » Wed Apr 25, 2012 7:54 am

ragesht wrote:noted, thank you for that dania

Another point is, unless you have someone who knows what they are looking for, the interpretation of any images whether it is an X-Ray, ultrasound, CT scan, MRI, venogram etc. will be useless. I just had another CT 64 slice scan yesterday and I am sending the images to my cardiothorassic surgeon by email. I completely trust his judgment and that he will be able to accurately interpret the images.
User avatar
dania
Family Elder
 
Posts: 1088
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users