This Is MS Multiple Sclerosis Community: Knowledge & Support

I am not sure if this study has been posted yet:





http://www.medpagetoday.com/MeetingCove ... ting/32376

The abstract is over in this thread:
www.thisisms.com/forum/chronic-cerebros ... ml#p190788

They ran the tests with ultrasound and MRI. I don't know about the MRI but the ultrasound is nearly useless in detecting CCSVI. In my own case the ultrasound technician said my veins were open and the blood was flowing. The venogram revealed an entirely different picture- left jugular vein 20mm in dia but narrowed to only 3 in the valve. The right jugular vein was 3 mm in dia.

I have found that when I look at the sunset with my eyes closed I don't see it. Therefore there is no sunset, it doesn't exist.


the nature of the intraluminal webs that fox reported finding in dead MS patients Is that they don't show up well with standard imaging and training. Simks saw a flash on my ultrasound and the venography confirmed it.

I don't either so I'll keep mum till I do. I have read some good results using Doppler US. At the lab in Barrie they used it. It is useful for follow-ups, after the procedure has already been done. It is a screening tool, not a final tool to use in diagnosis, but more to direct treatment, which uses something better. Something like how Ultrasound Echo-cardiograms are used before heart angioplasty is attempted. We patients cannot tell doctors which tools to use but we can tell what research is going to be of no use to us. The patient has already had the heart attack, and its severity is tested by enzyme analysis. The Echo is the last step before the angio (at least it was in my case). Smoke 'em if you got 'em, but my mind is clear.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

My ultrasound in Barrie showed 3 of 5 criteria for CCSVI. The ultrasound in NYC showed 4 of 5 criteria. So certainly not an exact or ideal method, but more a guiding tool for further investigation via venography and IVUS.




Agree completely.


tilt

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...and I for one, welcome our new Neurologist overlords!

My before and after CCSVI treatment video http://www.youtube.com/watch?v=RhosV4_DvWw
Visit my Lego Amusement Rides website http://www.brickshelf.com/cgi-bin/gallery.cgi?m=Bolliger

Yawn.

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Let's not forget this finding:
Conclusions:
Findings on a Zamboni-protocol US are not associated with findings on contrast venography in light of the high false negative rate; 99% of the patients with a negative US had a significant stenosis and/or flow abnormality treated with angioplasty. A prospective study is needed to define the role of US and other modalities in the non-invasive diagnosis of CCSVI.

Authors:
J. G. Almond1, M. Englander1, K. Mandato1, S. Parikh1, G. Siskin1

Source: http://www.sirmeeting.org/index.cfm?do= ... s&abs=2088

Also how about the azygos? You can't even see that one with ultrasound.

I had 2 of the 5 criteria and, from what the doc was telling me based on the ultrasound, I nearly canceled the treatment as what was found seemed so mild. But it turned out I had some interesting blockages that only showed up during treatment.